#chronicillness

The last 4 weekends have been jam packed with trips to Austria, Germany, Morocco, Italian Alps & Switzerland! Even though it's so much fun & I wouldn't change it, it can be a bit tiring - especially doing it all with a disease like Endometriosis playing war games on your body. So this weekend I'm looking forward to the perfect mix of couch, blankets, movies & attempting to destroy my husband at old school Mortal Kombat! #competitivemuch #familytime

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This is my mission and it is possible. I have always seen other people doing the things I love and thinking they are so lucky I would never be able to do it and then the excuses flow.
But now the excuses STOP ... I am setting intentions to reach my goals. Meditation and yoga daily will help me balance and heal myself and I will achieve my goals.
Does anyone else have these same thoughts? Stuck in a dead end job because it pays the bills and you don't feel you have a choice. But you do, everyone has a choice, you just need to listen to your inner voice and ignore your ego and you can do what you love πŸ’œ
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#love #beauty #truth #ego #innervoice #rumi #quotes #life #behappy #meditation #mindfulness #yoga #reiki #balance #chakra #soul #healing #choices #goals #achieve #spiritualawakening #spiritjunkie #spiritualjourney #endowarrior #gratitude #chronicillness #cfs #fatigue #chronicpain

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I have spent the past 3 weeks bloated. Whether it be a small bump or a big bump (makes me look 3-4 months pregnant), it can be incredibly difficult to keep up with the latest trends. Usually I'm in tracksuit bottoms, leggings and baggy jumpers to disguise it. My insecurities surrounding my body has always been in the background, as a teenager I would wear baggy band t-shirts and low waisted skinny jeans, in the winter it would be the return of the baggy jumpers to hide my body.
But today I woke up flat. Or at least the flattest I've been in a while. So today I get to put on a pair of high waisted jeans and tuck in top, without feeling uncomfortable. Today I feel confident, today I feel pretty, today I feel like me.
#ukblogger #lifestyleblogger #fashionblogger #ootd #ootdfashion #fashionblogger #chronicillness #invisibleillness #bloating #fashioninspo

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Zucchini fritters!!! Thanks for the inspiration @jessabelle88 πŸ’š

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MY STORY 🌿
Inspired to share my story about my illness M.E. by the lovely @yoga_mybed_and_m.e
Whilst pregnant with Archie I had Bell's palsy in my final trimester. Lots of people ask what this is. For me I woke one morning and watched my face drop in the mirror & become paralysed all down the left side of my face. It was incredibly frightening as I thought I was having a stroke. I couldn't blink with my left eye, my tastebuds were paralysed & I couldn't move the left side of my mouth as it just dropped & stayed in that position. I was hospital & put on an incredibly high level of steroids. Luckily by the time Archie arrived I had regained full movement as this is not the case for everyone.
After having Archie I kept getting flu like symptoms & feeling very unwell. I kept getting told I had mastitis but I knew I didn't as it felt different to mastitis I had in the past. After taking myself to hospital several times & feeling like I was at breaking point it was found I had sepsis. This was the beginning of a 3 year journey of having drains, tubes, needles & operations. At one point I was having to go to hospital everyday & having anaesthetic & a drain put in. Unfortunately the infection damaged my nervous system which has made my body think it has to constantly fight something, hence why I get incredibly exhausted & my immune system is lower than others.
I didn't & couldn't work for a while once I had finished all my treatment for the infection as it took everything out of me & I kept getting unwell. I do find now I'm incredibly lucky because even though I fight often with my health & body I have managed to go back to work it's only part time but at one point I didn't think this would ever be possible. I take each day as it comes because I wake most mornings with some sort of symptom. I worry constantly about having a relapse but try really hard to keep everything balanced. I'm also incredibly lucky because Mr B & both boys are my biggest support.
If you have read this to the end, well done & thank you for reading x
#myalgicencephalomyelitis #cfs #chronicfatigue #chronicillness #invisableillness #love #support #balance #bellspalsy #health #kindness #thankyou

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You have those days or even hours were flare ups are no one to be seen, and you question your pain?? Cos I do😭 Blessed for the good days. Without pain you wouldn't know joy!
An open blog for motivation& discussion! #follow #chronicpain #blogger #illness #lifestyleblogger #chronicpain #chronic #chronicillness #arthritis #crohns #life #lifeisstrange #lifeisbeautiful

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This was my super excited to go to @wbtourlondon face on Tuesday!! πŸ’›

Obsesssed with this jacket from @newlookfashion , have had comments asking where it's from everytime ive worn it, I love it!! #harrypotter #london #dayout #jacket #newlook #thisisnewlook #autumn #autumnfashion #fashion #fashionista #stylist #style #butyoudontlooksick #invisibleillness #fitness #fitnessblogger #girlsthatlift #ehlersdanlossyndrome #invisibleillness #chronicillness #chronicpain #motivation

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Because Bella is having a really shitty time and is back in hospital so soon due to medical emergencies resulting in more treatments and infusions, we thought we would brighten up her hospital room with a selection from her amazing hero happy mail.

Small gestures make a huge difference especially when your growing up in hospital and spend most of your time stuck in a clinical environment. Doesn't Bellas hospital room look bright and cheerful!
#herohappymail #herohappymailfriends #herohappymailcommunity #ourherobella #pcdh19 #childrenshospital #chronicillness #spoonie #hospitallife #medicalmommy #motherandchild #medicalinfusions #epilepsyawareness #tubie #roommakeover #interiordecorating

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#goodmorning to all of you. First, THANK YOU all for my birthday wishes yesterday! Had a fun day! Unfortunately I woke up at 6 am feeling very nauseous 🀒 Had to throw up a lotπŸ™Š My stomach is feeling off, my spoons are gone so no energy left a bit of headache. So today has been canceled πŸ˜” Hope you all have a wonderful SaturdayπŸ€ β€’
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#sick #sickday #hateit #thissucks #butyoudontlooksick #crps #chronicpain #chronicillness #exhausted #igdaily #instapic #instaphoto #instalike #invisibleillness #like4like #likeforlike #mirjamslife #nevergiveup #onedayatatime #photooftheday #rsd #spoonie #spoonielife #thisismylife #youllneverseemetquit #haveanicieday

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Loving this 'I just strolled out of teaching an art lesson' look πŸ˜†this was me last week shooting with my sissy πŸ“· @daisyhowkins
Currently I'm in bed still going through a bad flare up. I'm doing my best to deal with having good days and bad days. Hopefully tomorrow brings me better health. Stocked up on all the things to try and make me pain free. And of course I can count on my absolute gem @liamjkay to look after me, especially when I'm high on meds! πŸ’ŠπŸ›€πŸ›ŒπŸ’› β€’
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Any of you chronic illness sufferers remember I'm always here to chat too! You got this πŸ™ŒπŸΌπŸ™ŒπŸΌπŸ™ŒπŸΌ #manchesterbloggers #spoonie #chronicillness #chronicpain #endometriosisawareness #ENDOSTRONG #endometriosis #endosisters #invisableillness #disabilityawareness #endowarrior #discoverunder10k #fashionblogger #fashionphotography #doubledenim #artistsoninstagram #chronicallyill #chronicallyfabulous #chronicfatigue #chroniclife #spooniestrong #spoonies #spooniesisters #stylediaries #styleblogger #endo

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Learning to smile through all black holes I'm fighting. #cancer #cancersucks #chronicillness #faith #fitness #healthylifestyle #health #nevergiveup #smile #fitfam #positivity

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"please, for me. love someone
loudly today. tell them, overtly,
that they matter. that you see
them. hold them closely. we
are all we have"
~ Donte Collins
#dontecollins #supportnetworks #onlinecommunity #onlinefriendships #friendship #virtualisreal #politics #histories #chronicillness #mentalhealth #butterfly #nature #brokenwing #wildflowers

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The caption from my story says it all πŸ˜‚πŸ€£ Those blue pallets are heavy as hell!!! I couldn’t lift those before having my ileostomy though πŸ’ͺ🏼πŸ’ͺπŸΌβœŠπŸΌβœŠπŸΌπŸ‘ŠπŸΌπŸ‘ŠπŸΌ #work #worklife #hardwork #workoutatwork #heavylifting #gym #gymlife #gymmotivation #weightlosstransformation #weightlossjourney #gymgains #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness

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My Name is Fibromalgia, and I'm an Invisible Chronic Illness. I am now Velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over. Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay

A glimpse into our world πŸ˜” .
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#fibromyalgiaawareness #invisibleillnessawareness #fibromyalgia #fibro #chronicillness #chronicpain #fibrowarriors #fibrofighters #instahealth #spoonies #affirmations #inspiration #motivation #meditation #holistic #wellness #wellnesscoach #health #healthcoach #tothrivenotjustsurvive #thrive #survive

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Simple chocolate proats this morning before I head off to see my rheumatologist and pain specialist. Hoping she has more hope for me than I do.

#eatingdisorderrecovery #edfree #edrecovery #healthyfood #healthyeating #foodisfuel #fooddiary #blogger #anarecovery #anafree #iifym #iifymgirls #fitfam #chronicpain #chronicillness #osteopenia #arthritis #muscularatrophy #girlswholift #fitfam #fitness #liftingweights

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I miss you so so much Emily β™‘

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Banana pancakes for breakfast πŸ₯ž kcal 236 protein 10g carbs 40g fat 5g before my long walk with nugget this morning 😊 #pancakes #weekend #bananapancakes #saturday

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#sicklecell #shearandshine #awareness
Here we have @aaronmwallace founder of @shearandshine who founded the UK's first black grooming range with his personal sickle awareness message for the month of September
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What's incredible about @aaronmwallace is that he recognised a gap in the market and turned his dreams and passions into a reality while making his own grooming line to cater specifically for black men in and around Europe which is a showcase of black excellence πŸŽ‰πŸŽŠπŸ’«πŸŽ‡to its fullest.

Thank you Aaron on both fronts πŸ™ŒπŸΏπŸ™ŒπŸΏπŸ‘ŒπŸΏ #sicklecellmatters #sicklecellawareness #health #wellness #life #morning #blackexcellence #shearandshine #motivation #inspire #blackowned #grooming #entrepreneur #message #facts #video #london #uk #europe #community #black #men #chronicillness #support #breakthesilence #speakup #sicklekan

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#sicklecell #shearandshine #awareness
Here we have @aaronmwallace founder of @shearandshine who founded the UK's first black grooming range with his personal sickle awareness message for the month of September
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What's incredible about @aaronmwallace is that he recognised a gap in the market and turned his dreams and passions into a reality while making his own grooming line to cater specifically for black men in and around Europe which is a showcase of black excellence πŸŽ‰πŸŽŠπŸ’«πŸŽ‡to its fullest.

Thank you Aaron on both fronts πŸ™ŒπŸΏπŸ™ŒπŸΏπŸ‘ŒπŸΏ #sicklecellmatters #sicklecellawareness #health #wellness #life #morning #blackexcellence #shearandshine #motivation #inspire #blackowned #grooming #entrepreneur #message #facts #video #london #uk #europe #community #black #men #chronicillness #support #breakthesilence #speakup #sicklekan

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It's been a busy few days here at BearHugs and I've been absolutely loving it πŸ»πŸ’™ On Thursday I got to see my amazing friend @spooniesophia who inspired BearHugs and whose treatment the profits of the Sophia Box are donated to. She's the most incredible person I know and to hold her hand and have a good old chat was the best. Yesterday, @sianbarnell and I had a fab day sending a LOT of hugs on their way and I also popped out to chat with Paulette on BBC Radio Sheffield about the UK Packaging Awards and our new remote, accessible, flexible job opportunity. Today I'm off to @scarlettlondon's #BloggersFestival with @princestrust and I have the most exciting new additions to the BearHugs family to show off for the first time. If you'd told me two years ago that I could manage so much in 3 days I wouldn't have believed you. There will inevitably be consequences for being so busy and I will need to make sure I get in a lot of rest after- but I am just so grateful that I can even give so much a shot. I don't take my improved health for granted - I'm so fortunate that I have seen the improvements I have. Sadly this makes me an anomaly. So I'm more determined than ever to use BearHugs to help others affected by long term life-limiting conditions however I can πŸ»πŸ’™ #ilovebearhugs #bearhugsgifts #chronicillness #lymedisease πŸ“Έ: @helenadolby

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So, what with my announcement yesterday I've been having to say this Mantra to myself again. Be kind to yourself!

I wrote a piece a while ago for Pro Health about exactly this. You can check it out by clicking my bio link and it's the second button down.

#bekindtoyourself #mecfs #pwme #spoonies #fibromyalgia #chronicpain #endometriosis #chronicillness #lymedisease #blogger #spoonie

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I've woken up this morning and I'm more tired than when I went to bed! My middle daughter (10 yrs) has started having nightmares/night terrors and it's like having a newborn all over again. She screams and just wants to be near me, part of me feels so angry and annoyed that It keeps happening and it's exhausting me (even more than usual) and then part of me feels so desperately sad and I can't help wonder if it's my fault!? Maybe her anxiety is coming from her inner fear that she knows I won't always be around!? No one gives you a parent manual and there certainly isn't one for learning to parent whilst gradually loosing the ability to live independently. I can see the stress affecting the whole family and it makes me want to fight harder! I know have no choice but to get as much good time as is possible. So many beautiful reasons to be happy! #spoonie #spoonielife #chronicillness #chronicpain #chronicfatigue #disabled #sickandtiredofbeingsickandtired

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