#mals

Wayra taking a brake from playing with Salza and Tala.
#puppiesofinstagram #alaskanmalamutes #agoutimalamutes #mals #teamcahppes

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Hey Mally Boo 😊 😘 #mallyboo #malsandwich #mal2 #mals #my5headtho

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Who needs a kart when you have a lap? I am beyond THRILLED with how much I was able to do today in the wheelchair! 🎉 I usually only have the energy to maybe run a small errand like getting the mail. Then I'm done for the day. But we needed to get some more long sleeved shirts and I needed to be there to try them on. So out I went with mom and the wheelchair. Not only was I able to be there for over an hour, but I was also able to stop by two different medical supply stores looking for more compression tights. Yeah. That's THREE places. Granted, we were only in each medical supply store for like 2 minutes (because they didn't have what we needed) but that's still amazing! I'm so glad I have an explanation to my fatigue so I can work around it! 🙌Feeling very blessed! 😇..
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#findthepositive #pushingthrough #pots #potssyndrome #posturalorthostatictachycardiasyndrome #potsie #posteen #potsiestrong #mals #malsyndrome #medianarcuateligamentsyndrome #celiac #celiacdisease #chronicillness #njtube #tubie #spoonie #servicedog #wheelchair #wheelchairgirl #chronicallyfabulous

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Oh my goodness I am beyond tired I've been at the hospital all day for appionts since 9am I'm just ready to shower and jump in my bed. #gastro #medianarcuateligamentsyndrome #multiplesclerosis #tubie #mssucks #mals #gastricpacemaker #gjtube #gastroparesis #chronicallyill #spoonielife

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Another day another play date. A serendipitous bungle at the dog park meant that another lady turned up at my booking. We were both booked in. So we decided to share the hour. Dogs and humans alike made friends and now we're making plans to do it again, but without the glitch! Baloo and Magnus had an unsettled start but then my big oaf decided to play the pup and they had a fantastic time and are far more tired out than they would have been pottering around solo!
Sometimes when it all goes wrong...it's alright :) I'm not a good roll-with-it person. But I rolled. And I'm glad I did :)

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Mom, Charlie @charlietheluladog & I made it to New Smyrna Beach 🌊 for a few days of rest & recovery post treatment!! I'm beyond hurting & exhausted completely today, but we dragged an arm chair onto our balcony so I can rest, breathe in the fresh air and watch the waves. Seriously, nothing more healing 🙌🏻😍💕 Thanking God for so much today! #HealingVibes #beachtherapy #freshsaltyair #invisibleillness #lyme #POTS #EDS #MCAD #MALS #IC #GP #Fibro #CFS #moldtoxicity #stemcelltreatment #restandrecovery #GodisGOOD #fightlymewithlyss #nevergiveup #chronicallyfab #adventuresoflyssandcharlie #healing #LuLaRoeAlyssaLayman #BecauseOfLuLaRoe

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Italien!
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Das erste Eis in Italien gibt es heute in Mals, als Belohnung für die geschafften Höhenmeter über die Norberthöhe bei Nauders und den Reschenpass! Kaum zu glauben, dass wir heute morgen beim Aufstehen erst mal alles von einer Eisschicht befreien mussten und es jetzt schon wieder so herrlich warm ist.
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#bodenseetomediterranean #eisschicht #engadin #sonnenschein #reschenpass #vinschgau #mals

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Lugares que hablan 😂...#mals #zacro 🐭✨✨✨👍🏆 @zacrorcholis @malditoscritor

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This was my moment of pure gratitude, excitement, hope and joy while receiving my STEM CELLS!!! I'm so glad my sweet mama caught it on camera. It's a moment I will ALWAYS remember. 🙌🏻🙌🏻🙏🏻🙏🏻😍😍😷😷🎉🎉 I had my shades on because of a migraine, buuuut I know I look suuuper cool, so whatevs 🤷🏼‍♀️💁🏼😎🤣 I want to say THANK YOU for all the prayer, encouragement and love you've sent my way. Keep the prayer coming!! I cannot wait to see where God leads Sean & I and how he works through this treatment. There are so many GOOD things ahead!! If you're in the mood to shop, head over to my shopping group & getcha some adorable LuLaRoe. We are so GRATEFUL to have this business to help our bank accounts recover from my incredible trip & out of pocket treatments! #CHOOSEJOY #stemcelltransplant #celebratinglife #ThankYouJesus #LuLaRoeAlyssaLayman #BecauseOfLuLaRoe #invisibleillness #lymedisease #EDS #POTS #MCAD #MALS #moldtoxicity #GP #IC #Fibro #CFS #IV #Port #myfuturessobrightigottawearshades #GodisGOOD #ThisIsWhatSickLooksLike #HealingisHAPPENING #ChronicallyFab

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The surgery team said I can go home later today!! I'm officially standing on my own, I ate some crackers and apple sauce, and am starting to switch my pain meds from IV to ones I can put through my J tube! We won't know for sure the full effects this will have on my stomach for about a week when the surgery pain and nausea goes away, but so far I'm pretty optimistic! Dr. Kane, the anesthesiologists, and all the nurses have been amazing to me these past couple days! I think the hardest part is finally behind me... good riddance MAL!! 💪🏼💪🏼#posturalorthostatictachycardiasyndrome #POTS #dysautonomia #gastroparesis #tubie #GJtube #MALS #medianarcuateligamentsyndrome #EDS #ehlersdanlossyndrome #amplifiedmusculoskeletalpainsyndrome #AMPS #CRPS #chronicpain #invisibleillness #butyoudontlooksick #spoonie #spooniestrong #peoplehopetribe

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Sometimes you can't sugar coat things. Yesterday was really really hard. I got back to the house from the infusion and started throwing up in the hallway and into my room. I couldn't do much for myself and it felt miserable. I was able to get minor pain relief so we are going to keep up the infusions and see if we can get the pain to stay down. Here's to day 2!!

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Südbalkon☀️ mit Aussicht und Obstplantage
#südtirol #altoadige #vinschgau #valvenosta #alpen #ortler #mals #schluderns

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С 20 по 22 сентября наступает Новый 5778 год по еврейскому календарю. Приглашаю отметить этот праздник 21 сентября под аутентичную музыку @alla_reed &band в джаз-клубе Союз Композиторов @ucclub , начало концерта в 20:30 Резерв 8(495)629-65-63
Сладкого и удачного года! #джаз #идиш #иврит #этно #живойзвук #афиша #Москва #кудапойти #голос #АллаРид #атмосфера #красота #beaty #makeup #style #mals #mypic #creativeart #новыйгод #шанатова

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It was a rough night, but the surgery went well!! I was supposed to go in at 3, but that was then pushed back to 7 which means I wasn't out of the OR until 9:00! I did get extra fluids though, despite the many attempts at an IV and having to use the premie needle, so that's a plus! I finally got to my room after midnight and we have been working to control my pain ever since. I am allergic to narcotics, but I need the pain relief so we are running a Narcan infusion (the drug they give people who overdose😂) with them and it's actually helping the reaction! The Narcan and Benadryl combo is magical, but they do make the drugs less effective... therefore more pain. Anesthesia and the pain team are brainstorming right now and looking into which drugs work best on EDS bodies so hopefully we will have a better plan soon! Oh, and I also just tried to go to the bathroom and passed out on my nurse. It's been a fun night. Hopefully things will get better as the day goes on!

#posturalorthostatictachycardiasyndrome #POTS #dysautonomia #gastroparesis #tubie #GJtube #MALS #medianarcuateligamentsyndrome #EDS #ehlersdanlossyndrome #amplifiedmusculoskeletalpainsyndrome #AMPS #CRPS #chronicpain #invisibleillness #butyoudontlooksick #spoonie #spooniestrong #peoplehopetribe

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GIVE PEACE A CHANCE - elektronischer Ton Ausschlag auf einem Bunker , ja Sie sehen richtig das ein Wohnwagen der aus dem 4 Meter dicken Fassade ragt! !😃
#instagood #picoftheday #einladung #vintschgau #südtirol #southtyrol #altoadige #givepeaceachance #bunker #mals #travel #besuchen #picoftheday

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DAS IST AUCH SÜDTIROL :
Bunker 23. Einer der Bunker Anlage die im Jahre 1936-1942 gebaut wurden. Sie sollten Italien und Südtirol von möglichen Angriffen schützen.
Der Bunker 23 ist vor paar Jahren von einen Künstler Bernhard von Spinn gekauft und adaptiert worden.
#südtirol #southtyrol #altoadige #vintschgau # aktuell #mals #bunker #instagood #picoftheday #givepeaceachance

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I always like to see my people, so I was so happy for this window when we went out the other night!

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