Two years ago today!! I left for #MayoClinic in search of answers my GI could not give me. I was so full of hope that everything would be solved and I would get some answers as to why I was such a "complicated case". It's two years later, and while I've made progress, there are still new revelations that are keeping us on our toes, and welcoming the bits and pieces helping put the puzzle together. In these two years, the medical PTSD still lingers. But I do see that experience was a turning point in what I knew I needed as a patient. I'm stronger, more assertive with medical practitioners, and determined to keep moving forward. I will always advocate, I will always lend my voice, and I will always try to be the best version of myself through the peaks and valleys. #keepmovingforward #stayvigilant #mayomiss #Crohns #ehlersdanlos #EDS #awareness #fighton #operationremission #invisibleillness #autoimmune #chronicillness #IBD #MALS #notgoingback #medicalPTSD
I love the floor #dutchshepherd #belgianmalinois #dutchshepherdofinstagram #belgianmalinoisofinstagram #instadog #Mals #Dutchies #photography #DogPhotography #CuteDog #instabelgianmalinois #InstaDutchShepherd #Awesome #Cute #AmazingPhotography #CuteDogPhotography #TheDutchShepherds #TheBelgianMalinois #Winter #Lithuania #Lietuva #Klaipėda
Good morning! Hope everyone has a wonderful day today! Woke up with the great news that my Galium 68 PET scan (full body scan specifically for neuroendocrine tumors) was covered by insurance and it's scheduled for next Friday! This is wonderful news because some people can't get this scan covered and it's $10,000 out of pocket
This is 22 year old Payton who has CRPS, MCAD, MALS, SMAS, Severe dystonia, early onset Parkinson’s which caused her to have her leg amputated below the knee, and she is waiting to have a four organ transplant (stomach,pancreas, small intestine, large intestine, large intestine). Pray with me that she would get her four health organs soon and that her body would not reject them. Hugs to her from Team Hugs. We send more than Care Packages. We send prayers as well. #crps #mcad #MALS #earlyonsetparkinsonsdisease #dystonia #waitingonatransplant #chronicillness #chronicpain #teamhugcarepackages
*not in hospital just having a reflective week lol* Had an appointment with the oncologist this morning for more testing that took EVERYTHING out me. So exhausted...I also might have an incisional hernia. I got frustrated for a bit but then had to remind myself that this picture was where I was just ONE week ago and two weeks ago today I had 20% of my pancreas and two tumors removed...so I said to myself simmer down aubrey you're doing just fine second pic is bowie being a derp that was just too cute not to share. Vlog is up called a day in the life...I tried to capture what a day looks like for me with all my medicines and infusions -link in bio
| Walking test for my MS.| My sophomore year of highschool I lost complete feeling in my left leg. I remember thinking I'll never be able to walk without help again and look at me now.
#awareness #alwayskeepfighting #strongertogether #multiplesclerosis #gastroparesis #gjtube #mals #chronicillness #gastricpacemaker
*not in the hospital* just reflecting on how lucky I am to have such a supportive husband in my life. One who will take me to the ER no matter what time it is, one who is getting his PhD and has a second job to keep us afloat, one who will help me with my medicines, carry me to the bathroom, wash my hair etc when I am too weak, one who constantly reminds me that he will be by my side forever no matter how bad my health gets and maybe most importantly one who has ALWAYS believed me and my symptoms even when I started to doubt myself and think I was crazy. So lucky for you babe (completely unrelated yesterday vlog is up where I talk about losing friends to chronic illness -link in bio)