#dravetsyndrome

We are in need of donations in any amount for our Dravet families this Christmas. Donations are tax deductible. Without us, these families would not be able to provide much for their children on Christmas Day. Please help brighten their holiday. Link in bio. #donatenow #helpforchristmas🌲 #dravetsyndrome #brightensomeonesday #toysforkids #thoseinneed #giving #501c3nonprofit #giftofgiving

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Dravet regional conference with our favorite Dr Miller #dravetsyndrome #epilepsyawareness

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Professor Helen Cross OBE presenting #information on current and emerging treatments in #dravetsyndrome along with updates on the #fenfluramine trial for #families #DRAVETUK17

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Delighted to hear a talk from @profscheffer all the way from #Australia sharing expertise on #dravetsyndrome #DRAVETUK17

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Professor Lieven Lagae presents the DISCUSS #survey results for #dravetsyndrome to #families attending in #Liverpool #DRAVETUK17

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Cera, color y agua. #dravetsyndrome #outsiderart

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Cera, color y agua. #dravetsyndrome #outsiderart

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Our sweet Kate is 28 months old. For 18 months of her life, she has fought. Kate fights not just her own battle with Dravet Syndrome but is also fighting to bring awareness to Dravet Syndrome and to also share love and joy to the other sweeties who are fighting their own battle. This is how The Kate’s Story Foundation, Inc. came to be. This is the second year in which we have collected toys to be delivered to the children who will be hospitalized at Nemours Children’s Hospital on Christmas. Last year, we were able to provide for every child that was hospitalized on Christmas and this year we are hoping to provide for all of the children that will be hospitalized during the WEEK of Christmas! The truth is, life is precious. What we know of ‘health’ can change at any second. Let us GIVE this Christmas season. We will fight for all of you who are fighting your own battle, forever. 💜 #give #dogood #love #dravetsyndrome #anysyndrome #health #fight #nemours #nemourschildrenshospital #nch #katesstory #thekatesstoryfoundation #tksf #nonprofit #christmas #changetheworld

Please consider donating in one of the below ways: 🎁 We have 10 drop off locations in Lakeland and Winter Haven, FL. 🎁 We are happy to pick up any donations. 🎁 If you would prefer to shop online, you may have them mailed directly to us. 🎁 You may donate to our GoFundMe page. 🎁 You may make a donation directly to The Kate’s Story Foundation, Inc. You may mail a check or we can pick it up. 🎁 All donations are tax deductible and will go directly towards the purchase of toys/gifts for the children. We will be happy to provide a receipt.

https://www.gofundme.com/holiday-toy-drive-for-nch

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Afternoon #questionandanswer panel with top experts in #dravetsyndrome - Dr Elaine Hughes, Professor Ingrid Scheffer and Dr Michelle Welborn, led by Professor Helen Cross OBE #insights #sudepawareness #dravet

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Dr. Elaine Hughes speaking on 'Emergency Protocol' for #dravetsyndrome @dravetsyndromeuk #conference #2017

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Day 2 of 7 of @keendogtraining #thanksgiveawaychallenge
I'm thankful for; Adeline 👶🏼😘😍 Having a baby is a life-changing moment which gives you a whole other perspective on why you wake up every day.

Adeline is Smart, Independent, Strong Willed, and Vocal. She loves to walk and screech 🤣🙄 to make sure we know what she wants.
Through Adeline diagnosis and recent surgery she showed me just how truly strong she is. Nothing is slowing this warrior down. She is a warrior and well sorta iron-women with her VNS in her chest.
She will always be my #1.
#VNS #DravetWarrior #DravetSyndrome #fightlikeagirl #BabyAddy #AdelineElizabethWiles #ironwomen

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Professor Zuberi talking now @dravetsyndromeuk conference #2017 - An overview of #dravetsyndrome #DRAVETUK17

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Emma is at the Dravet professional conference today with a Matthew’s Friends stand on Ketogenic therapies. Matthew himself has Dravet Syndrome. #ketocollege #ketodiet #ketogenic #keto #ketogenicdiet #ketosis #dravetuk17 #dravetsyndromeawareness #dravet #dravetsyndrome #dravetuk

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Swim along and see us today between 9am and 1pm @ 22 Oaklands Grove 🐟💦 our charity Christmas Sale: framed and unframed art, cards, jewellery, lamps, clothes and toys... also coffee and cake - raising awareness for #dravetsyndrome #forcharity #housesale #fish #stilllife #pastelonpaper #pastelartist #pasteldrawing #softpastel #mackerel #workonpaper #amyshuckburghstudio See you there 🙌🏼

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GÅVA •Fall 31 🚫AVSLUTAT

Detta är Loke. In o läs med om honom. Läs mer på Facebook om hans gåva o historia. • Vi som håller på med detta är privatpersoner och gåvor mellan privatpersoner är skattefritt, alla pengar som skänks går till barnen, vi tar inte ut något eget på detta mer än givarnas otroliga stora hjärtan o våra små hjältars lycka. Mer info om vår grupp hittar ni på Facebook där finns även fler bilder på varje fall. VI HAR INGET SAMARBETE MED NÅGON, Alla presentkort köper vi som vilken privatperson som helst.
Mvh: Ellas hjältar.
#ellashjältar #körkort #facebook #barn #hjältar #tillsammansärvistarka #dravetsyndrome #bilbarnstol #ikea #presentkort

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If you make purchases through Amazon Smile, a small percentage will go to a foundation of your choice. November is Epilepsy Awareness Month and you can easily support Dravet Syndrome Foundation with this option. This institution helps provide information, support and research for those in need. This is a cause close to my heart and it's comforting to know Crochet Kids' Bags book and many other products are eligible for Amazon Smile donations. For more info go to smile.amazon.com 😊😊
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Si haces compras a través de Amazon Smile, un pequeño porcentaje irá a una fundación de tu elección. Noviembre es el mes de la concientizacion de la epilepsia y fácilmente puedes apoyar a la Dravet Syndrome Foundation con esta opción. Esta es una causa cercana a mi y es recomfortante saber que el libro Crochet Kids Bags, junto con muchos otros productos, es elegible para donaciones Amazon Smile. Para más info ve a smile.amazon.com 😊😊
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#epilepsyawareness #talkaboutit #dravetsyndrome #crochetlove #crochetkidsbags #amigurumibags

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Red Crab, pastel on paper. Lots of small still life - framed and unframed - on show and for sale at our ⚡️Christmas Sale⚡️ @ 22 Oaklands Grove W12 this Friday (tomorrow) 9am - 1pm please come along and help us raise money and awareness for Dravet Syndrome. Coffee cake and lots of gift ideas - children’s toys and clothes, lamps, rugs, jewellery, cards and more... 🎄⭐️ #amyshuckburghstudio #dravetsyndrome #stilllife #crab #festivecheer #christmassale #shepherdsbush #pastelartist opposite #proudmaryslondon

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Dravet can't hold this kid down 4 seizures in one week. He may need a couple hours to recover but he is back at it. He will always be my warrior, my #1 #dravetsyndrome #myepilepsyhero #KingKasen

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Rare #familyday together. We cherish every moment with these #meatheads and celebrate the chaos and love we are honored to be a part of. Each day is planned with massive expectations. At the end of the day, if we still like one another, if we learned brand new things, grew emotionally, made someone's day better, don't forget the fitness, got to squeeze in a moto ride in, a quick climb.... then it was a good day! @declarationbrewing @milehighcajun @denverbotanic @faymyersdenver #homeschool #dravetsyndrome #beer #awesomekids #yousetyourownlimits

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Today I wear purple for Bella! It's Epilepsy Awareness day. I love my Bella Bop! #bellastrong #dravetsyndrome

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Winning is always great but when you couple it with giving back it it makes it that much better. For winning our championship #RallySocialSports donated $150.00 on our behalf towards #Dravetsyndrome. #2017fallchamps

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The last month of no walking is starting to take its toll. Her leg muscles were already low tone, now the muscle wasting is apparent. We are going to need very intense PT once the seizures are under control to regain strength for walking. Seizures are impacting every aspect of life currently #epilepsyawarenessmonth #dravetsyndrome #seizures #developmentaldelay

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Chinese Lanterns With Quince , 12x9” pastel on paper, being framed to hang this Friday 17th November at a Christmas Sale in aid of Dravet Syndrome. Come and say hello from 9am until 1pm at 22 Oaklands Grove, W12. There’ll be coffee and cake and a chance to buy lots of things like lamps, jewellery, clothes, rugs, and to support this worthwhile charity #dravetsyndrome #dravet #dravetawareness

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