#duchenneawareness

Totally toucan dress @hopeforollie

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I need to channel my inner Elizabeth Taylor as I chase up a few professionals as to what’s going on.

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The face when water gives you freedom of movement 💦

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Always makes my heart smile to spend time with Braedan and talk hunting. #braedansbridge #duchenneawareness #memoriesforlife #nwtf @thenegar2

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Rest easy little man. 😴

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Yesterday my daughter’s friend had a birthday party at a roller skating rink. It was such a long way to go for my son just to hang around. The staff were so nice and welcoming and allowed Harrison and his special needs stroller on the rink. Please bear in mind I haven’t skated since the 1980’s. Lol

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Pool noodles are versatile things 😊

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Want to learn more about the amazing event we had with @liftlikelindsey and @autumocrossfit . Check out the link in our profile to see and hear how a strong community used their strength to give strength to Duchenne. .
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#fritzandfriends #strengthismoretnanmuscle #sharingiscaring #strength #muscle #crossfit #crossfitcommunity #duchenne #duchenneawareness #awareness #duchennemusculardystrophy #nonprofit #nonprofitorganization #partners

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Isn’t it just!!

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Hydro session improv. Loved getting the inflatable ball to float along with the pool noodle.

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Some kids don’t get a chance

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The eyes of innocence.

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Love that smile 😊

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Today Harrison trialled a power wheelchair for the first time. His neurologist confirmed he is quite weak for his age having Duchenne. It is hard news to hear.

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Yesterday we cooled off in the pool. Today he’s at school and its a top of 35 degrees/95 F. No aircon in his classroom though. 🙁

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My boy is full of kisses and cuddles.

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We were able to take his wheelchair up to the carriage and although a tight fit to assist him in it wasn’t too hard. He had a great time on this new ride.

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Learning to do circus tricks. ❤️

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My nephew turned 7 this week. 7 years old. 😱 Birthdays for kids who have a life threatening and debilitating disease can be bittersweet, to say the least. 💔 His muscles are deteriorating while all the other kids’ muscles are growing. Some kids want to be a doctor or an astronaut when they grow up, my nephew just wants to be able to grow up. 💜#duchenneawareness #dmd #hopeforjames #findacure #runningoutoftime

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Harrison’s been off school a couple days this week with a tummy bug everyone else seems to have too. Due to his medication it takes him longer to recover. Today, Friday, he seems to have recovered. Yay

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It’s not a hard choice.

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RECENTLY I TURNED A MOTHERS POEM INTO A SONG.. ITS A SONG FOR TOBY A LITTLE BOY WITH A TERMINAL CONDITION CALLED DUCHENNE MUSCULAR DYSTROPHY. HE IS JUST 6 YEARS OLD. 💔
IM SO PROUD TO BE A PART OF THIS.. CD’S ARE £4 EACH AND ALL MONEY RAISED IS GOING TO DUCHENNE UK. ❤️
TO WATCH THE VIDEO CHECK OUT MY FB - BAMBI DEE ANDREWS.

#duchenneuk #duchennemusculardystrophy #musicvideo #duchenneawareness #charitysong #awarenesssong #music #singers #teamtoby #muscularcondition #musclewasting #terminalcondition #goodmusic #musicfromthesoul #musicfromtheheart #raisefunds

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