#invisibledisability

I may have moved a little too quickly onto one crutch yesterday because I’m really hurting today! 😫 Definitely back to the double crutch today. .
Details of yesterday’s #ootd: top- #truevintage dress from @prelovedkilo, skirt from @lindy_bop, petticoats from @gracekarinorg and @collectifclothing. Slippers from @marksandspencer of course πŸ˜‰
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#JessicaOutOfTheCloset #disabodyposi #brokenbutbeautiful #1950s #vintageclothing #redhead #pinup #vintage #retro #pinupdoll #vintagedoll #lindybop #pinupootd #pinupgirl #crutches #crutch #instagood #ootdsocialclub #chronicallyfabulous #invisibledisability #fblogger #fashionblog #realoutfitgram
#flashesofdelight
#brightonblogger #disabledfashion

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You might recognise disabled TV Presenter/Blogger/YouTuber @jessicaoutofthecloset from our recent lookbook photoshoot. She is giving us some serious Chanel vibes in our Marianne Jacket. πŸ’—βœ¨
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#hearingaidpride #collectif #collectifclothing #diversity #invisibledisability #vintagestyle

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Did you know that we have an NDIS appeals service that helps people unsatisfied with a decision made by the NDIA with regard to their application or plan? For further info contact us or watch a full video on this service via our Facebook page. More details via link in bio. πŸ“· thanks to @ajourneythroughlifecbaz

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#ShoutOut to all of us who are living with an #invisibledisability #invisibleillness
#nevergiveup fellow #spoonie
I love you, you matter, you are important, and you're stronger than you realise. Our battles may vary, but they are very difficult battles. You are not alone. πŸ’š

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Once again we are at the doctors 😐. We are still searching for answers on what is causing my girl to feel like she constantly has a UTI😣. The doctors here are so helpful and are trying their hardest to find an answer. We aren’t sure if it has something to do with my girls bladder or if her kidney problems are affecting this issueπŸ‘ŽπŸΌ. It is nice to know that even though it’s not showing up as a UTI the doctors here are still listening and searching for an answerπŸ’•. It is important to advocate for yourself, if your body doesn’t feel or function the way it should you shouldn’t take β€œno” or β€œyou don’t seem to have an issue” as an answerπŸ’¬. You know your body better then anyone and you know how you should feel. My girl has been poked at and pricked a lot these past few weeks but it is well worth it to find us an answer. More importantly my girl knows she is never alone because she will always have me by her side! Thank you for tagging along on our journeyπŸΎπŸ‘£! Remember, adventure is out there 🎈! β€’ 14 months ______________________________________________________________#servicedog #servicedogtraining #servicedogteam #servicedogintraining #dogtraining #dogsofinstagram #goldenretriever #goldensofinstagram #goldenretrieverpuppy #goldenretrieversofinstagram #disabilityrights #invisibleillnessawareness #invisibleillness #invisibledisability #invisibleillnesswarrior #anxiety #GAD #panicattacks #chronicillness #chronicpain #chronicmigraines #spoonie #respectthevest #doctor #doctorsoffice #doctorsvisits

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My biggest pain-in-the-neck right here. And their cousin, the traditional pothole. Does the city even realize how much a pothole, a bump, an uneven pavement, can affect people with back backs, mobility and other issues?
Folks with EDS or neck/back issues, does driving over potholes and bumpy roads trigger any pain?
#invisibleache #youknowyouhaveedswhen

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I woke up at 4, very energic (rather maniac), went to my 7am class only with a purple Play-Dough and a Chapstick.
I crocheted until I ran out of yarn, and watched Christmas movies with my grandma. Then I ran out of spoons and had a nap...
Did you had a nice Monday??
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#selfharm #selfharmrecovery #depression #bpd #inpatient #phsychiatry #mentalillness #mentaldisorder #invisibleillness #InvisibleFight #invisibledisease #invisibledisability #hallucinations #phycosis #delusions #paranoia #mentalhealthawareness #mentalhealthmatters #myfight #recovery #heartdisease #chronicillness #chronicpain #painsomnia #spoonie #hypothiroidism #chronicfatigue #suicideprevention #arthritis #EDRecovery

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Sometimes it's hard por other people to understand the pain or how exhausting can our conditions be, they have never experienced what we face every day so they have no idea. That's why they underestimate or invalidate what we feel. But most of the time it's not intentional, it's just ignorance; never let people make you feel less or like a faker or that you are not "sick enough". Sending you good vibes!!πŸ’–πŸ’–
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#selfharm #selfharmrecovery #depression #bpd #inpatient #phsychiatry #mentalillness #mentaldisorder #invisibleillness #InvisibleFight #invisibledisease #invisibledisability #hallucinations #phycosis #delusions #paranoia #mentalhealthawareness #mentalhealthmatters #myfight #recovery #heartdisease #chronicillness #chronicpain #painsomnia #spoonie #hypothiroidism #chronicfatigue #suicideprevention #arthritis #EDRecovery

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A video of Jasmine performing her "go find seat" task (even though she went a teeny but off track this time) πŸ• Plus! We caught an interaction with a MOP (member of the public) on camera! πŸŽ₯
Generally I don't mind nice comments, and Jasmine is allowed to acknowledge them as long as she's not distracted/solicited further attention/moves away from my side 🐾
Jasmine was waiting patiently for me to put my bag down so she could "settle" under my feet πŸŽ’
Generally most interactions are nice and sweet like this!
Other times, we're not so lucky πŸ˜…
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Video description: Jasmine is shown to be walking by my side, walking slightly ahead for momentum. She walks a little of track before targeting the chair like asked. Once she reaches the chair, Jasmine stands still as I get ready to sit down. In the video you can see someone walk into frame and comment on Jasmine. Jasmine replies by watching them leave and a slight tail wag.
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Audio description (as accurate as possible):
*foot steps, gear rustling, wind*
Me: "Good forward."
*footsteps, birds calling*
Me: "Jasmine, go find seat. Yes! Good girl."
*slight treat crunching sound*
MOP: "Oh your service dog is beautiful!"
Me: "Thank you!"
MOP *to Jasmine*: "Hey, baby."
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πŸ“½οΈ 10/23/17 β€’ πŸ• 4 years
Check out our amazing Pawtners 🐾
@my_puppy_sparkles πŸ’«
@gweneapig 🌹
@gauge_thewonder_dog πŸ€
@psd.max 🍁
@sd.harley 🌻
@serviceaussie.blu ❄️
@gypsythegreat_pyreneessd 🌸
@tysontheblader 🌿
~~~
Use our code "shepherds" at @studiojdesigns for 10% off any purchase! πŸ’°πŸΎ

17πŸ’¬

This might look like a regular selfie, but I achieved a makeup goal today! This is my first decent cut crease ever, and small as that might sound, it’s boosted my confidence so much today 😝.
#rainbowhair #mermaidhair #unicornhair #septum #medusa #piercings #piercedgirls #motd #makeup #makeupjunkie #makeupaddict #cutcrease #altgirl #alternativegirl #alternativecurves #effyourbeautystandards #honormycurves #bigandblunt #bopo #bodypositive #iamsimplybeautiful #justmegorgeous #invisibledisability #chronicpain #spoonie #blueeyes

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Hey y’all! I just started a blog that will follow my life with chronic illness! If y’all could please go β€œlike” me on Facebook and check out my new blog. I would really appreciate it! All I ask is that you bear with me as I learn all of the technical stuff that goes along with a blog!

Facebook.com/chasingspoons
#invisibleillness #invisibledisability #chronicillness #chronicpain #chronicpainsurvivor #invisibleillnesswarrior #eds #edswarrior #ehlersdanlossyndrome #dysautonomia #dysautonomiaawareness #arrhythmia

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She’s happy because... I OVULATED!!! πŸŽ‰πŸŽ‰πŸŽ‰ Guys, I seriously can’t believe it. I was convinced I wasn’t going to #ovulate and we’d have to talk with the doc about what to do with my body... but now there’s HOPE!! I’m also feeling nauseous, like there’s a lump in my throat.. maybe, just maybe, I could be pregnant?!? πŸ€—

Let’s see if I can wait to test until this weekend πŸ™ˆβ˜ΊοΈβœ¨ #soulshine #journeytosoulshine #healthjourney #chronicpain #chronicillness #invisibleillness #invisibledisability #butyoudontlooksick #spoonie #fibromyalgia #osteoarthritis #degenerativediskdisease #POTS #dysautonomia #ehlersdanlossyndrome #connectivetissuedisorder #youknowyouhaveedswhen #pcos #infertility #fertilitytreatment #ttc #ttcjourney #letrozole #miscarriage #pregnancyloss #molarpregnancy #servicedog #serviceanimal

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β€œ23. Dysautonomia Brave!” This is me being brave. No makeup, no filter, unfixed hair, no real clothes, in my shower chair, after a shower. A version of my rawest self. Not only that, but showers are very difficult when you have POTS. It combines a lot of factors that are dangerous for us and cause our symptoms. Fist of all, you typically have to stand. When we stand our blood drains from our upper body and pools in our lower body. Our brains and hearts aren’t getting the proper amount of blood and oxygen. Standing alone brings out all our symptoms and causes pre-syncope or syncope episodes. But the struggle with a shower doesn’t end there. You also have the element of heat and steam. Heat intolerance is another symptom of POTS. Our body’s can not regulate temperature properly and it triggers additional symptoms. When I’m even sitting in heat, my heat rate will be 30 beats higher than in a cooler environment. Additionally, there is a lot of postural changes involved when taking a shower such as, bending over to shave your legs or pick up shampoo bottles, and putting your arms above your head to wash your hair. I’ve blacked out from putting my arms above my head in a seated, cool environment, let alone in a hot environment while standing. With that said my shower chair is essential, but it doesn’t even get rid of the elements that are so difficult. So yes, taking a shower is often an act of bravery for us, I know it is for me. πŸ’™#thedysautonomiaproject #dysautonomia #dysautonomiaawareness #dysautonomiaawarenessmonth #potsie #posturalorthostatictachycardiasyndrome #potsawareness #sick #tbi #braininjury #chronicallyill #chronicillness #invisibleillness #invisibledisability #makenoiseforturquoise #chronicillnesswarrior #chronicfatigue #brave #syncope #fainting #tachycardia #nomakeup #nofilter #spoonie #spoonielife #blueeyes #awareness #keepfighting

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Day five of #SpoonieYogaTribe is happy baby / ananda balasana. The question of the day is 'Who has been your biggest supporter throughout your pain/chronic illness?'
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I've been in constant pain since 2004. My parents were my biggest supporters and caregivers for the first many years.
For the past few years since I live so far from my parents, three people have supported me even in the extreme darkness and uncertainty of chronic pain, undiagnosed illness(es), PTSD, and pharmaceutical drug withdrawals (which can happen even when you take medicine as prescribed). I honestly think if I didn't have these three people, there is a good chance that I wouldn't be alive right now. They agree. I'm happy they're here.
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First and foremost is my partner and caregiver Larsson. He's never questioned my pain, symptoms, experiences, thoughts, or emotions. He accepts me for me whether we're out hiking or he's carrying me to the bathroom. He's incredibly adaptable, intuitive, and kind which makes him an exceptional caregiver. He doesn't leave me even when he's scared. He holds me tighter. Many, if not most, people do not possess this strength and resiliency. I don't think he knows how special he is. It's ok. I do. πŸ’•
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Second is my therapist. She has kept me alive. She doesn't leave even when she's scared. She didn't run when my brain kept telling me to end it. She's taking more classes on trauma so she can better support me and my Complex-PTSD. She listens to me. She encourages me to do my own research and listen to my gut. She tells me I'm smart. Most importantly, she believes me. Always.
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Last but not least is me. I work hard every single day to support my brain, body, nervous system, and conscious mind. I learn to listen to all the different parts of myself. I practice mindfulness and make sure that my days are spacious. I try to stay calm. I remember I am whole. I research everything and am good at finding treatments that help me. I am not scared when the darkness or pain hits. I don't leave. I try to hold myself tighter. If I can't figure out how to do so, my support team keeps me safe and loved.
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Thank you. ❀️
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#yogawithmaggie

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Really mom? πŸ˜‚.
β™‘
Hero is doing great and I am so proud of him! We have a trainer coming to meet him tomorrow to help with task training and PA, and we're both looking forward to learning new things!

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Went on a PA outting the other day with another SD team and we had a blast! Hero did fantastic even tho he has never actually trained with another SD around. We will definetely be doing another outting with these two sometime soon!

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Invisible Disability/Illness Week was last week 10/15-10/21. Remember: when you see someone using disabled parking, chances are they need it, even if they don't appear to.
#invisibleillness #invisibledisability #invisibledisabilitiesweek #invisibleillnessawareness #invisibleillnessweek #maketheinvisiblevisible #disability #disabledparking #parking #health #spoonie #chronicillness #chronicpain #chronichealth #invisibleilnesses #eds #ehlersdanlossyndrome #ehlersdanlos

2πŸ’¬

We keep the windows open, so the room gets pretty chilly, because we've found heat seems to either trigger, or is just easier, to have panic attacks and seizures. And also, cold is better, we prefer the cold here.
So to combat the cold, I'm a pupperrito 🌯😴🌯
❗️❕❗️❕❗️❕❗️❕❗️❕❗️❕❗️❕❗️❕❗️❕
Use code "kolafollower15" for @offleash.oils.co for a 15% discount, off of their already awesome, and affordable, products‼️
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Follow our pawtners (and DM us to be our pawtner too!):
@ella_the_assistance_dog
@lexithesuperdog
@servicedogtrooper
@simplybvermont
@clark_the_service_dog
@majora_sdit
@bentleythetherapydog
@_pawprints_on_my_heart
@service.dog.sam

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How often do you have those days where you don't want to have a care or worry? Today is one of those days for me! What do you do on those "peace and quiet" type of days? Paint? Read? Meditate? Etc???#shesinvisible
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#invisibledisability #womenshealth #wellness #womenempowerment #womeninspiringwomen #invisibleillness #encouragement #shesinvisible

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