#pseudotumorcerebri

I have desperately got to bleach my roots and tone this mess up, and shave my undercut as well. Cut my bangs yesterday though. Ended up somehow removing all the toner from my bangs when I did though. Don't ask, cause I'm really not sure how that happened. But yeah, I've been slacking bad lately. It's just been too hot still, making me too exhausted to do anything more than what I absolutely have to do everyday. I was gonna do it today, but decided to be a bum instead, since I have a long day ahead of me tomorrow. About to go apply for a new place tomorrow (on top of other things). We've been staying with my sister since we got back to Florida, but now it's time we move into our own place. Cross your fingers for me that we get approved! I really want this place in particular. It's in a perfect location and affordable (for the area) and just a nice place in general. On a side note, only 6 more days until The Walking Dead season premier! I can't wait! Speaking of not being able to wait, anyone else frustrated about the possibility that Game of Thrones may not be back until 2019?!?! It's killing me! It better be worth it. They better not screw it up for us, seeing as how it's the last season and they're making us wait so long for it. Anyway, I'm just rambling. That's all for now. 😘
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#Florida #gulfcoast #alternative #dyeddolls #manicpanic #pinkhair #tattooed #pierced #stretchedlobes #septumpiercing #thewalkingdead #gameofthrones #nerd #geek #gamer #gamerchick #athletic #healthnut #ptsd #depression #anxiety #invisibleillness #spoonie #pseudotumorcerebri #idiopathicintracranialhypertension #celiacdisease #multiplesclerosis #osteoarthritis #scoliosis #chronicpain

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First day at the new job was a success and was welcomed with open arms! Excited for what’s in store for me on this new chapter of my life 💕💕💕

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#motivationmonday honestly I've tried to type this out so many times. I have received so many messages and comments all the time about my loose skin. Of course I have loose skin my highest weight was 420 lb. I've lost over 200 lb since I started my weightloss journey. I know a lot of people fear losing weight because of loose skin I can honestly tell you that i rather have loose skin then all the health problems I did have. If your not happy about yourself before you lose weight you won't be happy afterwards. It took me a while to realize that. I love my body. No one every going to make me feel bad about that. Because you dont know what ive been through or ever walk a mile in my shoes. I went blind when I turn 18 from a antibiotic that cause me to have pseudotumor. Basically my spinal fluid went in my head and cause a brain tumor. Only have 13% vision in my left eye. I cope with food for the longest time after this happen. I try not let my disability effect my life. Everyone always forgets I'm blind till i fall or trip over something. But the point is everyone has there own reason of why they gain weight or fears of losing weight. I just wanna tell you never let the fear of striking out keep you from playing the game. Yes I just quoted a Hilary Duff movie, but you get the point that I'm saying. Losing weight is a long Journey it's not only physical it is mental too. Just never give up. I had bad days where I over ate and didn't work out. But i didnt give up. Each day was a new day to start over. Losing weight is hard but not giving up is harder. -
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#200poundsdown #vsg #wls #vsgcommunity #obesetobeast #verticalsleeve #gastricsleeve #weightloss #girlswithpiercings #girlswithplugs #nerd #fatbabe #plussize #healthyliving #losingweight #stayingfit #postopvsg #weightlossjourney #motivation #vsgbabe #inspiration #goals #pseudotumorcerebri #pcos #autoimmunedisease #hypothyroidism #gastricsleevecommunity #150poundsdown

58💬

Meine Maus...
Wenn sie strahlt, ist alles gut ❤
Auch wenn leider nicht alles gut ist...
Sie war so lieb zu mir. Wir sind ein Stück gelaufen, zu einer Freundin... nach einem Stück konnte ich kaum einen Fuß vor den anderen kriegen, vor Schmerzen und vor Anstrengung. Ich habe aber nichts gesagt. Iva lief neben mir her und legte ihre Hand auf meinen Rücken und begann ihn zu streicheln. Sie sagte "Ich streichel dich bis wir da sind, dann sind die Schmerzen besser"
Während ich das schreibe, kullern mir die Tränen runter 😢😢😢
Mein Pseudotumor cerebri ärgert mich wieder so sehr. Ich habe schlimmste Kopfschmerzen... mein Kopf wummert bei jedem Herzschlag. Als würde gleich die Schädeldecke aufreißen, weil der Druck so hoch ist. Mein Nacken schmerzt so sehr, mein ganzer Körper ist so verkrampft.
Meine letzte Lumbalpunktion war so schrecklich... ich zöger das jetzt so lange raus, bis es nicht mehr geht... ich habe die Hoffnung das es doch noch von selbst besser wird. Sowas von naiv... naja...
Es wird bestimmt bald irgendwie besser. Vielleicht kommt mir das Hirnwasser, was zuviel ist, ja aus den Ohren raus 😂😂😂
Kranker Sarkasmus ist der Beste 😁🤗 Ich bin ein Kämpfer 🤗
Was positives hab ich noch: ich kann wieder besser schlafen! Ein Segen 😊
#msfighter #multiplesklerose #multiplesclerosis #pseudotumorcerebri #intrakraniellehypertension #schmerzen #pain #mommywithms #chronicalill #momlife #kämpfen #alleswirdgut #einfachiva #msfamily #girl #littlegirl #4yearsold #liebeliebeliebe

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We post a lot about the negative side effects and problems associated with the Mirena IUD, because we want consumers to be safe, and we want drug manufacturers to work harder to produce safer drugs and products. Rolling back birth control coverage for women is a huge step in the wrong direction. All women deserve safe and affordable access to birth control and healthcare. "White House Rolls Back Birth Control Coverage" - 5280.com, October 2017 (read the full article at goo.gl/mQbJ33) . . .

#mirena #mirenaiud #contraception #iud#pseudotumor #pseudotumorcerebri#pseudotumorcerebriawareness #bayer#notobigpharma #bigpharma #health#healthandwellness #consumersafety#consumerhealth #idiopathicintracranialhypertension#womenshealth #birthcontrol #familyplanning

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I haven’t meditated in awhile and felt drawn to this particular meditation. It was just what my heart needed this morning before heading off to start my day. Forgiveness is the essence of everything! 💜💜💜

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Challenge yourself to your limits. Push yourself when you’re not being challenged. Life isn’t about just settling to be comfortable. Life is about challenging ourself to succeed beyond our wildest expectations 💪🏼💪🏼💪🏼

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Our best friend is truly our heart. We must treat our heart like it is our best friend and that we truly value it. Allow yourself to be the real you and the love will just over flow. Stop fearing life. Move forward in your life and leave fear behind and allow love to show the way! 💕💕💕

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I have a headache every single day, usually specifically behind my left eye. I get at least 3 severe migraines a week, standing up some days can be incredibly hard because I can feel the pressure in my head surge. I lose my balance more often because my head is swirling. I was partially blind for 6 months because the fluid from my spine overproduced and pressed my brain into my skull and optic nerve. I had terrible spinal taps that went wrong and caused me to have nerve damage in my leg leading to physical therapy to get me back on track. Even so... I don’t dare show how I’m feeling (except to my wonderful boyfriend who understands and occasionally my mother) because people don’t understand how to empathize people who don’t have a physical ailment. We, those dealing with pseudotumor cerebri, are often casted off as complainers or fakers because no one can see what’s really going on inside. That can make things even harder sometimes... to feel a certain way and not be able to express it for fear you’ll be judged. Fear your friends will stop wanting to spend time with you. But all that aside, I choose to still go out and do things. Be active and apart of the world. No matter how I’m feeling I force myself to get out and put a smile on my face.
Didn’t realize I’d write this much but man is it good to get things off your chest once in a while.
To all of those suffering and to all those who are afraid to express themselves.. keep your head up, you’re not alone, and you are strong.
#pseudotumorcerebri #strong

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💜 Dayna Update 💜
few days ago we said we would be posting an update on Dayna's condition, however it's been a bit of a hectic month so far. Dayna has been working very very hard in her classes and often finds herself burnt out by the end of the evening. She starts her classes early in the morning works on them until the afternoon takes breaks to eat and then goes back to a computer to complete her homework for the night. She's been complaining of fatigue, trouble focusing, lack appetite, and headaches that seem to be coming and going along with neck pain. She has an upcoming appointment this week with her scoliosis surgeon to follow up on some recent back pain. Dayna continues to eat relatively healthy and get as much rest as she possibly can, although she's been struggling with falling asleep. We'll be posting an update after we've visited her doctor and had a chance to see what he says. Thank you all for your constant love and well wishes. 💜✨
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#chronicillness #arthritis #arthritissucks #spoonie #chronicwarrior #rheumatoidarthritis #arthritisawareness #pseudotumorcerebri #seizures #seizure #autoimmunedisease #invisibleillness #kidsgetarthritistoo #arnoldchiarimalformation #malformacionarnoldchiari #chiarimalformation #scoliosis #health #healing #healthylifestyle #lpshunt #nonprofit #gastroparesis #juvenilerheumatoidarthritis

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What kind of life do you envision for yourself? What kind of future do you think of when you think 5, 10, or even 15 years down the road? ..
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I’ve always wanted to make a HUGE impact on the world and those around me. I’ve always wanted to do something BIG with my life. I envision being a women who has success in her professional and personal life. I envision being the person who wakes up every single day excited to do something she LOVES doing and has PASSION for. ..
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Stop with the mediocre. Stop with the eh just okay life. Shoot for the out of this world life. Reach for the amazing life. We were ALL placed on this world to make a difference. What kind of difference are you hoping to make? 💜💜💜💜

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Something wonderful happened to me today.
First of all, I have to say that doctors in my country and countries in the region know nothing about this disease, my country is small and has small number of citizens, as well as the surrounding. I'm from Montenegro, former Yugoslavia, currently living in Bosnia. I've met only one lady who speaks my language, but lives in Austria. Today one girl sent me a message to exchange experiences. We spoke in English of course. It was quite accidentally concluded that a girl is from Bosnia, where I currently live, which is bordering with my native Montenegro. And she speaks my language. I was so surprised. The world is so small. 😊 #intracranialhypertension #pseudotumorcerebri

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I miss my hair 😫#survivor #briansurgery #iih #pseudotumorcerebri

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Don’t let shit get to you ✌🏼Kiss the past goodbye 😘 Focus on the future 🤗 And work hard for the shit you want in your life 💪🏼

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Sunday’s are made for leggings, iced tea, and just plain old relaxing ✌🏼✌🏼✌🏼

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We all have choices in our lives. Choosing to put our needs and ourselves first is a reminder of self love. We must show the world who we truly are. Be authentic. Be vulnerable. Just be you. 💜💜💜

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Repost from @russian.radiology using @RepostRegramApp - МРТ в 90% случаев позволяет предположить повышение ВЧД по следующим признакам: уплощение задней склеры, «пустое» турецкое седло (empty sella), расширение субарахноидального пространства зрительного нерва, вертикальная извитость, усиление и внутриглазная протрузия диска зрительного нерва. Идиопатическая внутричерепная гипертензия. Видны уплощение гипофиза (белая стрелка), расширение субарахноидальных пространств зрительных нервов (красные стрелки), экскавация дисков зрительных нервов (желтая головка стрелки) и щелевидность третьего желудочка (желтая стрелка). MRI in 90% of cases allows to suggests an increase in ICP by the following signs: flattening of the posterior sclera, empty sella, expansion of the subarachnoid spaces of the optic nerves, vertical tortuosity, flattening and even intraocular protrusion of the optic nerve disk. Idiopathic intracranial hypertension. There is a flattening of the pituitary gland (white arrow), widening of the subarachnoid spaces of the optic nerves (red arrows), excavation of the optic nerve discs (yellow arrowhead) and slit-like third ventricle (yellow arrow).#icp #ich #pseudotumorcerebri #intracranialpressure #mri #neuro #neurology #neurosurgery #radiology #вчг #псевдоопухольмозга #Внутричерепнаягипертензия #мрт #нейро #нейрохирургия #неврология #рентгенология #лучеваядиагностика

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МРТ в 90% случаев позволяет предположить повышение ВЧД по следующим признакам: уплощение задней склеры, «пустое» турецкое седло (empty sella), расширение субарахноидального пространства зрительного нерва, вертикальная извитость, усиление и внутриглазная протрузия диска зрительного нерва. Идиопатическая внутричерепная гипертензия. Видны уплощение гипофиза (белая стрелка), расширение субарахноидальных пространств зрительных нервов (красные стрелки), экскавация дисков зрительных нервов (желтая головка стрелки) и щелевидность третьего желудочка (желтая стрелка). MRI in 90% of cases allows to suggests an increase in ICP by the following signs: flattening of the posterior sclera, empty sella, expansion of the subarachnoid spaces of the optic nerves, vertical tortuosity, flattening and even intraocular protrusion of the optic nerve disk. Idiopathic intracranial hypertension. There is a flattening of the pituitary gland (white arrow), widening of the subarachnoid spaces of the optic nerves (red arrows), excavation of the optic nerve discs (yellow arrowhead) and slit-like third ventricle (yellow arrow).#icp #ich #pseudotumorcerebri #intracranialpressure #mri #neuro #neurology #neurosurgery #radiology #вчг #псевдоопухольмозга #Внутричерепнаягипертензия #мрт #нейро #нейрохирургия #неврология #рентгенология #лучеваядиагностика

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Today is the first day in a very long time I've felt pretty good. Still having massive pressure on my brain and with that pain but I got to get out for a walk and get a few errands done. Hung with the wee ones. It's the little things that often get taken for granted that mean so very much me. I don't know what tomorrow will bring but today I felt like me again even for a moment♡
#blessed #pseudotumorcerebri #momof2 #invisableillness #evenwithmakeup #stillgotbagsundermyeyes #redlips #getngreyhair #alittlebitofnormal #iih #daybyday

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My two favorite people in the world. My mom Alyce who had a massive stroke and fights ITP,fibromyalgia and Alzheimer's. My daughter Brianna Alycen @heartofgoldandstardustsoul who suffers from fibromyalgia,raynauds & waiting on an EDS & Pseudo Tumor Cerebri Diagnosis. I've been through Lupus stage 4 kidney failure,myositis,APS,blood clots,Autoimmune pancreatitis,shrinking lung disease,fibromyalgia,raynauds,CHF,diabetes,ulcerative colitis,diverticulitis,PTSD,Anxiety disorder,vertigo,neuropathies,back fractures from 18 years non stop steroids & years of chemo. We fight these together never alone. We have a close bond that is unbreakable. I love these strong women with all my heart. #autoimmunedisease #alzheimers #lupus #pseudotumorcerebri #eds #aps #ulcerativecolitis #pancreas #itp #colitis #strongwomen #bonding #diabetes #lipsense #saturday #myheart #myworld #spoonie #💜#findacure #laughteristhebestmedicine #threeamigos #rare #disease

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Been following this pintrest bucket list for fall. One of things on the list was to crave a pumpkin. So yesterday I went all over the place looking for the perfect pumpkin to crave. So last night my friends and I had a Friday the 13th party. We craved pumpkins, watch Jason movies and ate pizza. Sometimes I still feel bad if i eat and go over 1,500 calories. It's that little voice inside my head like your going to gain all your weight back if you eat two slices of pizza. But i step on the scale and still was the same weight. It nice to sometimes step away from my diet and have fun with my friends. Being able to still enjoy life without saying no all the time when people offer you food. I do plan on starting a new diet tomorrow consisting of two protein shakes a day, healthy meal, and two snacks. Wanna try and break my weightloss stall because losing and gaining the same three pounds is getting annoying. I am happy that i went almost two months without tracking my food and didn't gain any weight. I know i was developing a bad eating disorder of anorexia, but after talking to my friends and family about it im been doing alot better at eating again. I have talk to alot of people who have had this trouble after losing alot of weight. Just know your not alone in this battle and its okay to eat and enjoy life. Losing weight is hard but not giving up is harder ❤
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#200poundsdown #vsg #wls #vsgcommunity #obesetobeast #verticalsleeve #gastricsleeve #weightloss #girlswithpiercings #girlswithplugs #workingout #foodaddiction #vsgbabe #plussize #healthyliving #losingweight #stayingfit #postopvsg #weightlossjourney #motivation #vsgbabe #inspiration #goals #pseudotumorcerebri #pcos #autoimmunedisease #hypothyroidism #gastricsleevecommunity #fallweather #fridaythe13th #plussize

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Kilo approves of the new couches given to us by Cindy and Darren 😻😻😻

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Finding your WHY in life will change your perspective on everything. Finding your purpose will help you see the clear path ahead of you. Why do you want certain things? Think long and hard about the life you truly want from this point forward. ..
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Why do you want happiness? Why do you want success? Why do you want freedom? Why do you want to feel loved? ..
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Take time to think about what kind of life you desire and want. Then right it down and remind yourself of it EVERY SINGLE DAY. And then every single day wake up with the intention to live that kind of life and work towards being the happiest version of yourself possible 💕💕💕

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It is an Icekap and Theraspecs wearing, migraine, IIH, and fibromyalgia flare $hitty kind of day. Still feeling grateful I have my Dad here to take care of me. While I can't wait to find a new apartment, I am going to miss being here and having someone to run to the store to grab me some ginger ale, organic canned chicken noodle soup, and my prescriptions.
#icekap #theraspecs #migrainefromhell #migraineur #intractractablemigraine #chronicmigraine #migrainewarrior #statusmigrainosus #iih #pseudotumorcerebri #iihwarrior #fibromyalgia #fibro #fibrowarrior #fibromyalgiawarrior #chronicpain #chronicpainwarrior #chronicillness #chronicpainwarrior #spoonies #butyoudontlooksick #invisibleillness

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