#spoonietired

@emmy97xox and I just watched Fantastic Beasts and Where to Find Them. What a brilliant movie, we both loved it. The Niffler reminded us so much of our ratties, just the way he moved was so rattie like. I hope there’ll be a sequel! #fantasticbeastsandwheretofindthem #brilliant #movie #lovedit #nifflersrule #niffler #rattie #ihopetheresanothermovie #neededabreak #restandrecharge #spoonie #spooniepain #spoonietired #spoonielife

2πŸ’¬

I am. I'm also spending the week with my baby girl & I'm just resting. Hubby & I get introduced to so many good movies when we're with her πŸ˜ŠπŸ‘ We love our time with her. The weather is bothering me big time but I'm having a great time. I hope you're having a comfy low pain day #sotrue #imtired #fatigued #spoonietired #mytruth #truth #spoonie #myspooniejourney #chronicpain #chronicillness #chronicfatigue #purpleness #invisibleillness #painsomnia #myspoonielife #invisibleillness πŸ’œπŸŒΌπŸŒ· #unknownmemecreator #lovemyfamily β™₯️

6πŸ’¬

Aww, that wading thru mud exhaustion. I'm there now so it's off to bed. Hubby & I took a drive & the lightening storm is here again. Gotta get prepared for that weather battle. Prayers for a good nights rest, deep comfy sleep & low pain. Goodnight. Sweet dreams. Gentle hugs 😴 #sotrue #wadingthrumud #exhaustion #spoonietired #wadingthrumudexhaustion #truth #myspooniejourney #mytruth #myspoonielife #spoonie #invisibleillness #chronicpain #chronicillness #chronicfatigue #purpleness #chronicillnesscat πŸ’œπŸŒΌπŸŒ·#unknownmemecreator

2πŸ’¬

I've traded in the bags under my eyes! I'm now the proud owner of cargo planes under my eyes! WWII cargo planes to be exact!!! #exhausted #spoonietired #dragginass #adultingsucks

1πŸ’¬

Here's the booth. It's over, I had a blast and saw lots of old friends. I'm a squashed overcooked noodle now. Sold a few Story Quilts (yay!) and did a lot of Tarot Readings (yay!). Now I just need to recover for a few months. Thank goodness G and another friend helped me pack up and drove me home! #exhausted #spoonietired #somuchfuntho

19πŸ’¬

On the way to Sunday dinner and back again. I took a scary and painful tumble today - the world seemed to tilt, then I did, and balance was a thing of the past. Tried to stop the fall, but I think I just made it worse - I sprained my wrist, landed on a footstool causing aches from my lower back down the side of my thigh, kept going and scraped myself across a cardboard box causing #abrasions that are not comfortable, especially since I'm SITTING on them.) Figured flats were called for, and these are my favorites... I'll probably wear them until they completely fall apart! On the way home I was tired and in too much #pain to switch... so it was #fuzzysocks all the way. #Spoonie #SpoonieLife #SpoonieTired #DizzySpell #POTS #POTSie #POTSy #Chiari (newly diagnosed) #NeurologicalIssues #HeyWhyNotRight? #JustThrowMoreStrawOnTheCamelsBack #AtLeastIFellAsleepAlmostImmediately #ExceptIDidntGetAChanceToTakeMyMeds #ImFeelingTHATNow #InAllTheSpotsIHitOnTheWayDown #ThisWasSupposedToPostHoursAgo

0πŸ’¬

This comes close to how #tired I am. I feel like I don't have the energy to stand up, move a single inch, read, or even watch πŸ“Ί tv so I'm going to bed already! #fibrotired #spoonietired #hypothyroid #fibrowarrior #fibroflare #fibrofighter #fibrosucks #fibrolife #spoonie #spoonielife #spoonieprobs #beyondtired #exhausted #fightlikeagirlπŸŽ€ #dreambig #dontforgettopray #gratefulfortoday #thankful #disabled #retiredmilitary

6πŸ’¬

It is & I'm so tired now πŸ˜„. Time for a nap, hopefully πŸ™πŸ½. Have a great afternoon. Gentle hugs #supertalent #spooniesuperpowers #spoonie #invisibleillness #chronicchaos #chronicillness #chronicpain #purpleness #myspoonielife #mytruth #myspoonielife #gentlehugs #spoonietired #exhausted #depleted #naptime πŸ’œπŸŒ»

2πŸ’¬

BUT playing with my baby nephew was so worth it & hanging out with family! Baby nephew & I played cars, with his mega blocs, with puzzles & we shot some hoops on his lil basketball goal. It was fun & definitely worth the tiredness I feel. He gets so excited to play that I just try to keep going until one of us runs out of gas & it's usually me πŸ˜„. I hope you had a good Spoonie day. #sotrue #iam #onehundredfourpercenttired #soworthit #payingtheprice #nocomplaintshere #playtime #babynephew #lovemyfamily #spoonie #spoonieknows #truth #spoonietired #purpleness #invisibleillness #chronicillness #chronicpain #chronicchaos #mytruth #myspoonielife #myspooniejourney πŸ’œπŸŒ»πŸ‘ΆπŸ½πŸ€βš½οΈπŸŽπŸš’πŸš•β€οΈ #unknownmemecreator

5πŸ’¬

This is so understated but I love how cute Snoopy looks πŸ˜„. It was fun hanging out with you today. Prayers for a comfy nights sleep with low pain & sickness. I'm so excited for tomorrow because I get to hang out with my baby girl πŸ‘πŸ½πŸ˜Š. Gentle hugs. Goodnight. Sweet dreams. #tired #drained #plumtuckeredout #exhausted #spoonietired #snoopy #peanuts #hadfunhangingoutwithyou #spoonie #myspoonielife #mytruth #takecare #goodnight #sweetdreams #gentlehugs #purpleness #chronicpain #chronicillness #chronicchaos πŸ’€πŸ’œπŸŒ» #unknownmemecreator

0πŸ’¬

... and then there's #spoonietired ... If you don't know what that means, hope and pray you'll never understand. #spoonie #spoonielife #gnzpfrmbl

0πŸ’¬

This has been so true for me. I just prayed for my Spoonie normalness to come back. It was beyond anything I've ever struggled with as a Spoonie. Having chronic bronchitis & pneumonia in the past was like a walk in the park. I'm concerned how much more damage was done to my non-existent immune system after what I'm still recovering from. I'm just praying I can recover back to where I was before my battle with #hematemesis #gastroenteritis πŸ™πŸ½ #truth #mytruth #spoonie #ugh #myspoonielife #purpleness #invisibleillness #battling #chronicillness #struggling #chronicpain #spoonietired #spoonienormal πŸ’œπŸŒ»

8πŸ’¬

After seriously battling hematemesis gastroenteritis (what I was diagnosed with last Monday & what caused me to be admitted to the hospital), extreme, beyond & over the top exhaustion is what I feel. Everything is overwhelming & especially with major changes happening in my life, It seemed like I couldn't catch up on rest. I am resting tho. The tiredness is fierce but I'm still getting myself up. Yesterday I got up to print something I needed & I was so worn out afterwards 😜. I was so happy to get out of the house today & spend it with my daughter & Ms Owie. It was a fun day. My spirits were scraping bottom & they were definitely lifted today even moreso. I'm so grateful that my #family carries me when I can't carry myself both physically & emotionally. It's a good tired I feel now because of my loved ones. I hope you're doing Spoonie good. #tired #truth #tiredsomemore #spoonietired #spoonie #myspoonielife #mytruth #purpleness #spoonierecoverytime #itsbeenastruggle #stillbattling #chronicchaos πŸ’œπŸŒ»

3πŸ’¬

Today's my last 8:30AM class!! πŸŽ‰πŸŽ‰ it's been terrible but this mandatory class is only ever offered at 8:30. I've taken 8:30AM courses before I've become sick and was tired, but didn't have intense neurological symptoms associated with the pure exhaustion. Now with my fatigue, no matter what time I go to bed at, I'll sometimes hallucinate, my limbs will go numb, my eyes will dry out and go red (my profs always ask me "what's wrong?" cause they think I've been crying), etc, etc. Spoonie tired is a kind of tired no healthy person will ever experience, it's not comparable. It's not a tired that sleep will fix. 😴 Vitamins and supplements don't help, eating the most pure diets from gluten-free to raw vegan to paleo don't help, but Modafanil does help take the edge off to the point that I can drag myself to my 8:30 class. Words cannot explain how relieved I am to have this course over with (even though I love what I'm learning). #spoonietired #cfs

1πŸ’¬

Story of my life: I moan all day about how tired & exhausted I am but when it actually comes down to going to sleep I never can.. πŸ™‰And the worst part ... When I wake up, I never feel like I've had a sleep anyway... πŸ˜”Still wake up knackered!! 😩 #whyme #ulcerativecolitis #uc #chronicillness #chronicfatigue #ibd #ibdawareness #crohnsandcolitis #crohnsandcolitisuk #crohnsandcolitisawareness #tired #neversatisified #spoonietired #spoonie #exhausted #ulcerativecolitisproblems #poorly #sleepy #nevergiveup #storyofmylife

1πŸ’¬

While the fiancΓ©'s away, Hammy and I will start to get my hair ready to Stella tomorrow! I have allowed 45 mins for hair and make up in the morning.... Fingers crossed I can pull off @rubyrose with red hair in that time!! Night #spooniefam πŸŒ› I promise there will be photos in costume tomorrow! πŸ”Ά is the new ⬛️ after all!#Stella #rubyrose #oitnb #redhair #cosplay #comiccon #mcm #london #spoonienights #spoonie #earlybed #fianceonthetown #halloweenpjs #hammythehamster #helovehalloweentoo #halloweenqueen #fingerscrossedforextraenergytomorrow #morespoonsplease #spoonie #needwheels #nofilter#chronicallyfighting #chronicillness #chronicallyill #fibroflare #spoonietired #fibromyalgia #ME #CFS

2πŸ’¬

Spent my day drawing & painting. Made this birthday card for my brother whose birthday is coming up in 2 weeks. When I make birthday cards, I add their birthday flower. I don't know why, I just like to πŸ˜„. I hope he likes it πŸ™πŸ˜Š I'm done for the day, I'm tired so going to go lay down for a bit & hopefully get a walk in after supper πŸ‘ I hope you are having a low pain day. #birthdaycard #homemade #forbrother #october #amateur #drawing #painting #watercolor #freehand #pumpkin #birthdayflower #bat #spiders #spiderweb #fallleaves #witcheshat #halloweentheme #falltheme #hadfun #spoonietired #timeforanap #spoonie πŸ“’πŸŽ¨β€οΈ

2πŸ’¬

Basically. πŸ˜‚ Absolutely knackered but unable to sleep.... I can't seem to win the battle against fatigue!! πŸ™‰πŸ˜© LET ME SLEEEEPP! πŸ™πŸ’€ #insomnia #fatigue #fatigueinibd #ulcerativecolitis #spoonietired #wideawake #help #cantsleep #viciouscircle #fedup #looklikecrap #darkcircles #shattered #iwantosleep #frustrated #ulcerativecolitisproblems #prednisone #prednisolone #steroids #sideeffects

0πŸ’¬