My battle w/ autoimmune diseases & path to partnership w/a Service Dog. Spoonie 25+yrs. w/ Fibro, Migraines, DDD, Tarlov Cysts, Arachnoiditis, & more.
189 posts 305 followers 266 following
I’m trying here guys. I guess, I need an alarm to remind me to do this so here is FOUR & FIVE. FOUR: Once a week I have a medical massage and trigger point injections done. I never miss!!! I drag myself no matter how bad I feel, because I know I will get a tiny bit of relief. FIVE: I love bai Molokai Coconut 🥥 is my favorite beverage!
Having a hard Spoonie Day: The extent of our holiday decorations this year is a wreath! I literally used to have to pack up everything that was not furniture in my home to make room for the Christmas Decorations. I eventually graduated up to two trees in the house. Now nothing. My husband and son says it is no big deal. But to me it just is not Christmas.
Ok...I am going to start today. So here goes. One, Two, and Three
ONE. 1. Fibromyalgia, 2. Arachnoiditis, 3. Degenerative Disc Disease, 4. Spondylosis, 5. Spondylolisthesis, 4. Compression/traumas to Spine in Cervical & Lumbar Regions 5. Osteoarthritis 6. Depression 7. Anxiety 8.Endometriosis 9. Chronic Pain Syndrome 10. Hypoglycemia 11. Food Allergies/Sensitivities (to many to list). TWO. I went to a Dr. that gave me basically uppers and downers to deal with my day. Needless to say, I didn’t feel those scripts or return to see him. I just will not live like that. I can’t. THREE. Since so long I will make this short...if I could have my health; I would choose my health. I have fought my body my whole life. I have fought not feeling well and wanting to doing what everyone was doing, my entire life. Stories for another time, but just know...if I could choose weather to have fun with my family or be sick in the bed. I would choose fun! I would choose LIFE, but I have to know that there is purpose in this PAIN! There is PURPOSE in all that my family goes through with me. I know they love me and they know I love they! Thankfully that is what matters most! LOVE!!!
I am sorry that I have not been very active, nor have I updated you on what is going on. I have not been very well. I could use your prayers and support during this time. Chronic pain is never easy during this time of the the year, even if you are taking all your meds.... I am still waiting on the Ins. Co. approval for my Pain Pump. Please Pray!
I wanted share my experience today. I went to lunch at my son and daughter-n-love’s home. There were friends, wonderful food, great fellowship. I MADE MYSELF GO, because I love my children and my friends. I know they would have understood, but I would have had more issues over it than them. This is typical I believe of the #chronicallyill and #invisibleillness community. This is still not who I was. It is not who I want to be. I will not let it steal anymore from me than I absolutely have to allow. Leaving early is ok. Allowing others to know you are not well, is ok. We do not have to disclose everything (still learning). “I’m fine ”, does not have to be our standard response. You are your priority!
Updated! Raw and Truth/ Long (Sorry) Finally, on my Pain Pump Trial done on November 20th. • I appreciate everyone’s support and love you are all my Rocks!!! I am not done yet!!! I am still MED FREE! The trial is wearing off. Which means that I will be having more and more of the pain; just like I had just before the trial. Fun right! Not so much!!! I need anyone and everyone’s prayers that an ANGEL at my Ins Co. does not take the maximum amount of time to respond. They have 15 days!!! Please I do not want to lay here in pain that long. My Dr. says don’t get ahead of myself. For us to see how things go. But it is the Thanksgiving holiday they are gone for the weekend and my pain is returning. There is no help till next week at the earliest, if any. I am trying hard to keep a positive attitude, because that keeps my anxiety in better check. It can run away with me . Quickly! I will put my faith in more than myself and in the strength that I know that I have!!! Thank you for your support and for listening!!!
I have not spoke much about my medical history or medical conditions. I have suffered with chronic migraines since I hit puberty in sixth grade. I of course was one of the first girls in the class to do that. (Fun right! Not...🤨) I suffered with chronic headaches and terrible migraines from there on out! My allergy headaches that I had since BIRTH (let’s say) were nothing to what I started to experience. I was deemed dramatic! PMSing!!! I was given the lasted over the counted meds, that never helped. My head or my PMS (another story for another day), because for those of us who have or had puberty issues can relate to that: migraines can flare during that time of your cycle and boy would mine!!! I tell you all: that my road to here started long before now...I am a PRO AT DEALING WITH PAIN...since childhood. I can smile, I can talk, and then go be sick: because I have had to do it my whole life to have a life! Not unlike most of you. And I have wanted a life! A Love - Hubby! Amazing / Children - Amazing (not easy/but achievable)/ I want to let you know that in all this pain I can see that I am blessed! We have to find joy in our lives; even in the small things! Love you all!!!
I plan on doing a video about my Pain Pump Trial on Nov 20th. I am just still recovering. I had a lot of nausea today. I have been suffering from the worst cluster migraines; I believe I have ever had. We finally got a third med tonight for me and it seems to be working. (FingersCrossed). Thank you everyone for being patient. I have been trying to respond to everyone when I feel well enough. I appreciate everyone that has sent prayers, positive thoughts, hugs, and comments! I can’t tell you how much I appreciate your support! You are my ROCKS!!!