OCD+IBS+POTS+Fibro+Migraines Symptoms may include : -sourness w/ a dash of salt 💕DMs always open💕 🔴💛
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Sadie Mae on a walk to do some task work training! She did great other than getting riled up when we saw a puppy. She did a cardiac alert and response (going under my legs & then DPT), which I was so impressed with! Her training is really coming along! On a side note, the side effect of this short walk (literally half a block) was a HR of 163bpm. From walking. Yikes. And I have a terrible stomach ache that isn’t responding to meds. I have used pills, the heating pad, and some deep breathing, none of which have helped. I’m disappointed.
That is what a soda does to my insides. I have been in some bad abdominal pain for the past two hours. All for what? A root beer and some ramen. But yeah, I am obviously just “overthinking it” (my GI doctor’s words when I asked why I have such a hard time eating). Yeah, I don’t think so. No more soda for me.
Sometimes I am angry with POTS for stealing things from me. I almost didn’t come to church this morning because I was so tachycardic. I was able to collect HR samples for SD training all morning lol! But I decided to lay down in a dark room and prop up my legs to get my blood flowing and give me energy to go on. I’m going to teach Sunday school today and there ain’t nothing POTS can do about it!
#pots #posturalorthostatictachycardiasyndrome #fighter #chronicillness #chronicallyill #illness #dysautonomia #dysautonomiasucks #migraines #fibromyalgiasucks #chronicillnesssucks
Here is how I shower as a POTSie and Fibro warrior. First thing’s first, I use a shower chair. Many people tend not to go this route because it makes you feel like an old lady. But, it’s safe and effective. I would recommend it as a first for anyone newly diagnosed. Next, I use my personal bathroom, which has a detachable show head so you can control the amount of water and amount of time spent showering. I also have a no-slip mat underneath the chair for getting in and out of the shower. Then, I set out my clothes and towels beforehand for easy access. Finally, I have a shower mat right in front of the shower. This helps to prevent falls. I also use a stool to sit on while putting on my clothes, or resting after a shower. Hope you found something useful out of my rambling!
#pots #posturalorthostatictachycardiasyndrome #fibromyalgia #fibromyalgiasucks #chronicillness #chronicillnesswarrior #anxiety #gad #ocd #servicedog #chronicallyawesome #disabilitynotinability #migraines #irritablebowelsyndrome #ibs
What happens when I try to take a team photo! she’s quite the dog, let me tell you. Sadie Update: I am determined to make it work. She is so smart, and has actually come a long way in fear factors. She is so dang smart, with already a collapsing response, a perfect walk (heeling, sitting when I stop, etc.), and a great down-stay. She can also press elevator buttons and handicap door buttons. She has psychiatric alerting down and medical response is almost solid. When I collapse, I instruct her to go under my legs and prop them up to get blood to my head, and then DPT until I can get up. She loves to work and I am optimistic that with a lot of training, we can get over these hurdles! Right now, she is doing pet-friendly PA for small amounts of time to get her used to working in a distracting environment!
Struggling a little right now. I’m just in so much pain and am so weak. It’s hard. My parents just don’t understand. I need advice for something, anything I can do to help this and be able to go out more. I have to sit down in the middle of the grocery store (3 times!!!) and get tired so easily. I try to exercise, but my heart screams at me to stop. After taking a short walk the other day (not even gonna mention my muscle pain) my resting heart rate was a constant 115bpm with my legs elevated and laying flat. Getting up it would immediately go to 160bpm. It’s exhausting and takes a lot out of me. Help?
I’ve seen it one too many times. “She says she is in pain and all she posts are photos of her smiling”. Well guess what? Everyone is allowed to smile, no matter what kinds of pain they are in. You cannot feel the exact pain they do, so don’t assume it’s not there! We of all people deserve to be able to smile once in a while. And, I often smile while I am in pain so others don’t worry.
#comeonpeople #anxiety #gad #ibs #irritablebowelsyndrome #pots #posturalorthostatictachycardiasyndrome #ocd #fibromyalgia #migraines #chronicillnesswarrior #chronicillness #chronicpain #speakupandspeakout
Smile through the storm. God gave me this life because I am strong enough to live it. -
I am thinking about getting a wheelchair. Walking long distances and standing is really hard. My parents won’t even let me use my walker outside of the house. I had to sit down in the middle of a busy checkout lane a few days ago, and I only went in to buy almondmilk! Anyone who has a wheelchair they are willing to sell for a cheap price (good condition; good brand; pediatric, etc) please let me know. I am trying to build my argument so anyone with any advice please let me know! Anyone else with fibromyalgia have a wheelchair? What about my POTSie friends? I keep being told I will grow out of these diseases and will be fine so I need to exercise more, not less. I tried tennis last year as my “PE” and it was heck. I was winded all the time and could hardly make it up the stairs. I was always dizzy and irritable. My migraines were worse. People are telling me “oh, it’s because of puberty! You’ll grow out of it!” Puberty? Yeah, right. I am at least three years away. I have almost no body fat so who knows anyway. I have had IBS since birth, POTS since age 7, and my Fibro and Migraines since age 10. Puberty? Not sure. Will I grow out of this? Anyone?
I have some new accommodations at school, one of which is the elevator pass (only for disabled and/or injured)! It has made things much better. However, my meds have not. I am so sleepy (side-effect) that I cannot function at all. In most of my classes, I am merely existing. It’s bad. Trying to fight it but I keep dozing off. I went to bed two hours early last night and woke up 45 minutes later than normal. I still had to pry myself out of bed and there are bags under my eyes. Yikes. #sendhelp
An accurate depiction of where I am at right now in terms of eating. I made this plate of pasta for myself. The first photo is the before picture, showing the amount that was originally there. The second is the after picture, taken just after I finished eating. Both look almost the same and yet it was a very large amount for me and it made me feel sick
This picture is so fitting for what I am about to say. Anyone who sees my story knows that I was getting tested for POTS by a local neurologist who specializes in the Autonomic Nervous System. I went in and was told that I would be doing the “poor man’s tilt table” first. If anything was unclear, they’d proceed to the actual tilt table. Well, during the test, my HR went up to 159bpm when I stood up. They told me that they had all the information they needed, and brought the doctor in to see me. He came in and after talking to him for a while, gave his verdict. I apparently do have POTS, but it doesn’t end there. I also have chronic migraines with and without auras, a confirmed diagnosis of IBS, and a diagnosis of Fibro. I have quite a few meds now as opposed to my anti-histamine and Lexapro It feels like, for the first time ever, I am validated and my pain is real. Cue the sunshine, like you see in the photo. And while you may not be able to tell, I am wearing my #chronicallyjaquie2017 tee shirt (my fav by far) to represent what that channel means to me. @chronically_jaquie was the first person to ever make me realize that I was sick. I was always tired, I had daily headaches, I was anxious, I was dizzy, and my muscles hurt badly. But no one ever suspected chronic illness. Jaquie’s videos helped me see that I had POTS, and seek help. I would have never known about that condition without her. And, I would never have met this amazing chronic illness community. I finally feel happy and like I belong somewhere. I have made many friends that have helped me through good times and bad, and I have done the same. So thank you to everyone who shares your story, whether here or on YouTube. Education is key, and it can mean the world to someone like me.