#chronicfatigue

Yesterday was the last library story-time of 2017. Some of the kids brought me Christmas presents and it totally make my day! I’m so grateful to be able to spend my Tuesday mornings crafting with them. 💓






#volunteering #chronicillness #chronicfatigue #ehlersdanlossyndrome #zebra #dysautonomia

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Cozy at home this evening ❤️

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Listening to audio about #tms by #drsarno on YouTube. His work has dramatically changed how I approach my chronic pain. I have had #fibromyalgia #tmj #ibs #anxiety #depression #insomnia skin problems, #migraines #arthritis and #chronicfatigue for more than a decade. Not to mention severe sciatic nerve pain after a back injury with a herniated disc. I have recovered almost completely from all of these things after reading and learning about TMS. It may sound hard to believe, and it's hard to explain, so I'm often hesitant to talk about it, but the bottom line is that strong emotions and repressed anger and fear are the reason behind my health issues. One of the reasons my art is so emotive is because I am using it as a tool to work through some of the trauma and emotional pain I'm trying to resolve.

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Food and ‘diets’ have gone fucking mental
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Myriad studies emerge showing fats are good, fats are bad, meat is the devil, meat is necessary…….It is confusing as all hell
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So let’s take it out of compartmentalised science and into the real world
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There are five ‘blue zones’ in the world where inhabitants enjoy remarkable good health and longevity
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These zones are in Greece, Italy, Costa Rica, California and Japan
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Foods vary, but there is huge overlap in what these communities eat
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They are all predominantly plant based; vegetables, fruits, nuts and seeds, with meat and fish as an accent once a week or so. Some have a little goat or sheep milk, no cows milk
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They eat significantly less calories than the standard Western diet and a very light dinner to give optimum rest and repair time
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Some of these communities fast, which helps cut all disease processes and slows ageing
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All have a strong sense of community, emphasise the importance of elders, exercise, enjoy nature and laugh often
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It is what we eat, but also how we eat. How we approach our food mindfully, as part of life in a community, appreciating the source of our food; the earth
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Working with clients we educate on these principles, taking anxiety away from the worries of ‘oh my fucking god I ate a carb/a piece of fish/an origami swan!’
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Eat mainly plants, eat to cut inflammation and repair, learn about your food, and tune in to how your body responds
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If it isn’t a whole food; if it is chemically processed or refined, then it has no place going into our face. No exceptions
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If this is a struggle then it is emotional eating or an addiction and that’s ok. We ALL use food to self soothe, so we can use any difficulties to learn to self soothe in new ways. No shame, no judgement, just a route in to deeper healing
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So this is how I eat. I don’t stick a label on that says keto or paleo etc as that caused anxiety and it lead to me joining groups that contained humans that were totally fucking bat shit mental; living on grape juice, sun beams and outrage.
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So tune into your body and heart, don’t bullshit yourself. If you’re not eating to heal - why not? You deserve to x

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I hope you are all okay and if you are not feeling okay know that it is okay.. you don’t have to hold it all in all the time, let yourself fall apart without judging yourself. You are an amazing person and you fight everyday along with our daily life responsibilities or goals that “normal” well folks don’t.. so you’re freaking badass everyday!!! #chronicillnessquotes #chronicallyill #chronicillness #chronicpain #chronicfatigue #spoonie #spoonieproblems #fibromyalgia #itp #lupus #cancer #ibd #eds #endo #ra #ms #pots #lyme #crohns #pcos #ptsd #anxiety #depression #insomnia  #eccedentesiast #butyoudontlooksick #thyroidproblems #pain #staystrong #thespooniechronicles

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This illness is replete with ups & downs. Unpredictable. It makes me want to end every friendship preemptively because will I ever be a real human again? It's just one of those days. I know it will pass. But meanwhile: PICARD.

#invisibleillness #pots #spoonie #illness #sickandtiredofbeingsickandtired #sick #fuckillness #chronicillness #chronicallyill #chronicfatigue #fibromyalgia #pain

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This is the face of #cfs. The baggy eyes of #chronicfatigue. The dry lips of #muscles deterring away day by day. The blemished face of #chronicpain. The weeping eyes of #chronicillness. The forced smile to #stayalive.

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Neurological symptoms are part of m.e. Stuff like memory issues, concentration issues...I struggle sometimes with understanding spoken words. Thankfully I'm antisocial so it's only a bother occassionally. XD

One of my more embarrassing symptoms (as far as I'm concerned) is that when my fatigue gets super bad I can't keep my mouth closed. It just hangs open as if I'm in shock. I get embarrassed and try cover my mouth as a result. I hate my mouth (I have too small lips, discoloured teeth, been told I smile, talk and laugh weirdly etc...) so I hate it dangling open.

#moreranting #dealwithit #myalgicencephalomyelitis #chronicfatigue #chronicpain #illness #spoonie

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After days of barely keeping myself awake I am now unable to sleep, despite being more fatigued than usual. So I'm gonna rant a bit with posts. #DealWithIt

I think I overdid it a couple days ago by doing 10 minutes cleaning (timed it) as well as my college work. But you can't always tell - you kinda have to do less than you can in order to continue doing stuff the next day.

#myalgicencephalomyelitis #chronicfatigue #spoonie

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Dear #Uterus, I love you because you are a part of what makes me woman. I love the hope that I will be able to grow and sustain a life within you one day. You are a part of who I am... but I also hate you. Like, a lot. All the time. You're annoying, time consuming, painful and costly. You give me stacks of grief. Why can't you be a normal organ? Love me, the rest of my body, my pain receptors and my mental health.
Anyone #relate? 😂😂😂 Also love this geometric illustration, but have no idea who did it!

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One question I get frequently is “what do I do when my doctor just wont listen?” So I posted about that on the blog today! {link in bio} I will be doing a new blog post every single Wednesday so stay tuned! Tonight’s is being posted later than they usually will because my brain has been focused on finals. But make sure to keep an eye out every Wednesday because I have a lot in store for you guys!

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Something that I've struggled with (and I know a lot of spoonies do) is comparing my self to others. But we need to remember that we are not on equel playing fields so we shouldn't compare ourselves!

#spoonie #pots #potssyndrome #goyou #chronicillness #sick #snail #smallacomplishments #dysautonomia #chronicfatigue

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#QUESTION #SLEEPLESS in #UK 💜
Any #FibroWarriors #InvisibleIllness & #CfS Warriors awake at crazy hours usually?
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What do you do to manage sleepless/insomnia nights 🤔 💜
I just get into creative flow and go along with the ride until I can sleep 😴 ; whether that’s good or not who knows🤐😃🤷🏽‍♀️
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Chiko
#CfMEliteBusinessWomen
#CfMLifestyleBiz ⚜️⚜️⚜️⚜️⚜️⚜️⚜️⚜️⚜️ #lupus #chronicpain#chronicillness #lupuswarrior #chronicfatigue #spoons #fibromyalgia #flare #countingmyspoons #invisibleillnessawareness

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Day 13: Support System?
MY AMAZING GIRLFRIEND!!! I love her more than tacos. She's always there for me and always listens to me even when I'm whining about pain for hours on end. She's an absolute angel. I honestly cannot go on enough about how much I love her and all the incredible things she's done. We slow danced at her prom, we made out on the beach at midnight, we rode a Ferris wheel and I held her hand so she wasn't as freaked out, she went with me to my audition for Disney to be moral support, and we made out in front of the White House out of pure gay spite and pissed off the Secret Service!
Mi amas vin, Violet.
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#spoonies #spoonie #spooniestrong #spoonielife #spooniechristmaschallenge #trans #transgender #transpride #gay #gaypride #lesbian #lesbianpride #chronicillness #chronicpain #chronicfatigue #beach #ldr #longdistancerelationship #cute #cutecouples #romance #esperanto #esperantisto #esperantist

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I can't even begin to describe how I feel at this moment!! Whether to cry or jump up and down. I'm a flood of emotions!!! 😭💃 It's been almost 3 years of multiple doctors, countless vials of blood, and numerous tests which started taking it's toll on my mind and body. 🏳️

Today as I had yet another specialist appointment, I didn't think about it. I didn't want to get my hopes up only to be let down. I choose to not allow myself to think about it out of fear of disappointment.

I walked in and waited....he came in, looked at my chart and notes, did his assessment and gave me at least 2 official diagnosis. Fibromyalgia and chronic fatigue syndrome.

Hallelujah..I have a name to what ails me!!! But then I was given a blow....I had been tested for a virus that keeps showing up in blood work and it's worth looking in to. So next up, 13 vials of blood and off to see the best infectious disease doctor around.

I'm blessed to have a doctor that understands there is something wrong and just doesn't tell me a bunch of bullshit and writes me scripts to pacify me. But that he wants to find the root of what it could be.

Just when I wanted to give up and end the search, the universe told me not just yet!! Wait...I'll show you. And it was right 🤗

Tomorrow is a new day....a weight off my shoulders and now a name to part of puzzle.

Watch out now...I got a pep in my step and I'm gonna show the world what a girl with fibromyalgia and chronic fatigue syndrome can do 👊💥😉

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I can’t even tell you how painful it is to be exfoliated when you have fibromyalgia!! It’s one of those pains like doms (delayed onset muscle soreness- the discomfort felt days after a workout) that you put up with because you know the benefit and end result outweighs the temporary discomfort. Slow, diaphragmatic breathing helps and let’s your body know it’s ok, no need to stress. Massages are just the same - not relaxing at all even with the slightest touch. Days and sensitivity fluctuate - today is a sensitive day. #fibromyalgia #youreawarrior #strongerthanyouthink

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Not understanding my body at all. I've been painfully bloated all day. I keep having to pee, and it's super cloudy. Can we just stop with all these issues.😧😷
Having bad back pain again today. I noticed the headache pain is when my head is at a slightly tilted back angle, like when I'm watching TV or sitting up and reading. Meh.
I called my neurologist and told his nurse that I was curious if the symptoms have to do with my MRI results. She said she would have him check them over and get back to me right away.
(They show two discs starting to buldge and two of them beginning to flatten my spine).
Let's hope he calls tomorrow with some help🤞🤞 #crohnie #crohnsdisease #autoimmunedisease #inpain #invisibleillness #chronicillness #chronicpain #chronicfatigue #colostomy #ileostomy #ostomy #ostomate #pelvicpain #pelvicfloordysfunction

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Help! I want to go play in the snow with my boyfriend and enjoy my second favorite form of water. My POTs symptoms have been acting up all day, now I know why, because of the snow. Well guess what, I want to go in the snow and play. Does anyone have remedies or tips for the snow and symptoms?
#EDS #EhlersDanlosSyndrome #POTs #posturalorthostatictachycardiasyndrome #snowandsymptoms #spoonie #advice #chronicillness #chronicfatigue #chronicpain #postconcussivesyndrome #chronicallymotivated

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I took this one a while back and was so happy, but since I've realized my posture is really bad. I'm crouching my shoulders and hips should be more forward. Is it lack of strength or just faulty technique?

#wip #bodyweighttraining #calisthenics #functionality #chronicpain #chronicfatigue #EhlersDanlosSyndrome #eds #rehabilitation #playandfun #progress #strength #muscle

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Story of my life.

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All dressed in #pink thanks @grifdegirls for these lovely ideas to add to a #pink wardrobe! #pinkcoat #pinkboots #pinkbag #all4theloveofpink 💘👀Good 💓💗My #instragram is one of my #wellness tools for the fighting #chronicpain Living In The #Pink 💗💞💕💝💘welcome to #inmypinkclub #pinknation #pinkday #pinkfashion #pinklover #thinkpink #pinkpower #pinkfashion #pinktheme #pinkworld #pinkish #fashion #fashiondesign #fashiondesigner #fashionaddict #fashionista #fightfimbromyalgia & #CFS are disabling diseases #chronicpain #chronicillness #chronicfatigue Spreading the word about an illness that only spends 5$ on research in the #usa EVEN less in the #uk

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I always love a warm cup of something at night, whether it’s hot cocao, tea or my new favorite, bone broth. I have to admit, when I first started my health journey I just couldn’t bring myself to drink it. The flavor wasn’t doing it for me until I attended a NTP meet up at Just Be Kitchen and they had a BONE BROTH BAR! That’s right, a giant vat of chicken bone broth will all of the toppings. It was basically an ice cream sundae bar for a health nut :) Since then I have realized that bone broth needs fun mix-ins in order to kick up the flavor and as an added bonus - boost up the nutrients! My favorite bone broth cocktail is below. Go ahead and try out this gut healing drink that’s loaded with collagen and protein. It’s easy peasy and just as relaxing to sip on as a glass of wine. 🐔🍵

Instructions:
•Warm up the broth on the stove (lately I’ve been buying Pacific’s organic chicken bone broth from Costco that comes out to about $3.20 a carton. It’s also super easy to make your own, just Google for recipes).
•My favorite add ins:
*One clove of chopped up garlic
*½ inch chopped up ginger
*Sprinkle of turmeric powder
*Sprinkle of sea salt
*Cilantro and jalapenos are also good here!



#bonebroth #bonebrothheals #chickenbonebroth #bonebrothrecipe #guthealth #guthealing #leakygut #healyourgut #Autoimmune #autoimmunedisease #autoimmunediseses #autoimmunepaleo #autoimmuneprotocol #autoimmunewarrior #autoimmunediet #totesaip #autoimmunewellness #aippaleo #aipfriendly #invisibleillness #AIP #lichensclerosis #chronicillness #psoriasis #sjogrenssyndrome #chronicfatigue #chronicpain #chronicfatiguesyndrome #celiac #vitiligo

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So true 🖤 when you’re healthy it’s difficult to fathom what being in pain 24/7 is like. Please remember to be empathetic, compassionate and forgiving to those with any illnesses, physical or mental, as you don’t know the battles we fight every second of every day. Beyond the pain is also misunderstanding from family and friends. Be kind. Picture from @chronicallykillingit #chronicillness #chronicpain #illness #fibromyalgia #compassion #instadaily #everydaystruggle #chronicfatigue

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I am getting this one off early, rather than tomorrow. This one is a question, I'm deeply interested to know; so, here it goes;
What is the truest and best gift you can give to another person? It must be a person you do not know, or have attachments to in any way.
I'll reveal my answer by Fri Morn.
💚👣 Image from when I was Stationed in Posey
#photography #philosophy #inspiration #positivity #hope #dreamlivedo #brokenisbeautiful #keeponkeepinon #creativity #writing #life #autoimmune #chronicfatigue #CFS/ME #chronicpain #fibromyalgia #lupus #ms #endometriosis #hashimotosdisease #arthritis #healthandwellness #mindbodyspirit #healing #nature #hiking #adventure #hope

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