#chroniclife

so...saunas are sweaty...
thank you @edoussan and @nayebird for letting me encroach on your infrared this morning! 🔥💦❤️

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I was Moving Forward
Way Back Then
When...
•Computers
•Triathlons •Ultimate Ftisbee
Were in their infancy
Others were plugging away
Some were doing rehab after sports injuries
And of course I was not the only one in my situation
Or a similar one
However, I was already rewriting the plans for my life
Since my body could no longer keep up with my previous goals
I think meant a lot of quick soul searching during college years
And doing a semester here or there to get surgeries done
As well as prerequisites if I wanted to finish on time &
Apply to graduate school
I did manage to continue to #moveforward
But it was not without very #hardwork #angst #juggling #compromise #perseverence
#MSPT
@dukeuniversity
@dukept1984
@dukedpt
Missing #aptacsm2018 #NOLO
Due to #chroniclife
Used to go to all #aptacsm even when ill until it became impossible
Often people in #healthcare understand #chronicillness least
Need #accommodations
#fatigue alone is major factor for #patients affected by #arthritis #immuneillnesses #autoimmunediseases & all #chroniclife
#advocate Part I & II
Need continued #awareness #education #support
To continue to #moveforward
@docmaw_co
@aptapics
@apta
@moveforwardpt
@arthritisfoundation
@curearthritis
@creaky_joints
@idfcommunity
@sjogrensfoundation
www.back2backwellness.com ❄️💗⛷️
💗💫💗

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Magic aft @naturalhealthherts event with @dottytunes. Especially Martin Powell’s revelational #medicinalmushrooms talk. Invested in #lionsmanemushroom known to help with #neuropathy by encouraging actual #nerve growth. Also looking out for the #immune boosting red #reishimushroom. ❤️🍄•••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••• #mushrooms #medicinal #sebiapproved #chronicillness #chroniclife #chronicpainwarrior #spoonie #spoonielife #raredisease #ataxiaawareness #superficialsiderosis #fibrowarrior #transformation #styleblogger #garb #chronicstyle #invisibleillness #nervepain #neuropathy #fibromyalgia #healing #wellness #positivevibes #healing #naturalhealth #nutrition

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Hey hey hey!! Been away for a while, getting some treatment and healing myself. Hope everyone is doing well! I have missed posting on here very much!! #chronicillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #chroniclife #chronicallyill #invisibleillness #cfs #cps #pain #ibs #irritablebowelsyndrome #spoonie #sponnielife #spoonieprobs

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A new blog was posted on trulyjazzy.weebly.com! Be sure to check it out and let me know your thoughts by commenting on the post.
#January16 #Lupus #LupusAwareness #ChronicIllness #Lupie #Spoonie #SpoonieAdventures #ChronicAdventures #TrulyJazzy #ChronicLife #Sick #Tired #SickAndTired #Pain #iAmHealed

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Sometimes I sit and wait does an angel, he know the places where we go when we feel tired, grey and old.
De vegades m'ha sento i espero un àngel, ell sap els llocs on anem quand ens sentim cansats, grisos i vells.
#goodlife #life #love #me #guy #tired #grey
#lifestyle #feelgood #photooftheday #instaphoto #instagood #instalove #picoftheday #beautiful #instalike #health #chronicpain #chronicpainwarrior #chronicillness #invisibleillness #chronicpainsurvivor #endurance #survive #fatigue #disability #pain #chroniclife #autonòmics #painwarrior

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As you may or may not know, I’ve been sick for several weeks dealing with an upper respiratory illness and/or bacterial infection in my throat. I was supposed to start monthly Simponi injections February 7th, but I’ve had to hold off on that until this illness is completely gone. And until I’m not taking any antibiotics (I finished one round last week but might need another one). I’m eager to start the Simponi, of course, since Rituxan didn’t seem very effective—like the last several biologics I’ve tried. But like so many other things related to RA, I don’t have much control over this. So...more waiting. Once I finally do start the Simponi, I really hope it will work. I think I’m on my second to last biologic now, which is scary. I’m running out of options here and I’ve been stuck in limbo way too long.
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#rheum #rheumatoidarthritis #rheumatoiddisease #autoimmunedisease #autoimmune #simponi #biologicdrugs #biologicmedication #biologics #selfinjection #immunosuppressed #immunesystem #immunesuppressed #rheumatology #inflammation #chronicillness #chronicpain #chroniclife #jannssenbiotech #johnsonandjohnson #spoonie

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thinking about switching to syringes over the autoinjector 🤔😂

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Hiding behind a thin veil of strength and beauty. Don't let this facade be all you see.
Can you see the pain? No, I've spent years learning to hide it.
Can you see the fatigue? Of course not, I've hidden that too.

We all pack away something about ourselves when we put on our best faces.
#beingcharis #chroniclife #chronicpain #lifeofcharis #sacfw #sacfashionweek #ankylosingspondylitis #spondylitis #spondy #chronicdisease #invisibledisease #invisibledisability #advocacy #sacramentomodels
Image: @ikona_photography

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Finally I found some #energy to #diyhair 😳 #sins #oktober I tried to go to the hairdresser. That’s about 300mtrs from our house. But today I had to do it because I refuse to go out like this on our short holiday. No more gray hair for me 💪. For now relaxing 😌 my hubby and I packed our suitcase. Because it’s bad my energy level and pain. But tomorrow we go for 5 day’s away to the coast. Very cold but we have a fireplace in our bungalow. And it’s gonna be fun this week 🤗. Thursday we have a #family day. And we are gonna swim with our two #granddaughters 💕. In a tropical 🏝️ swim paradise 👍. But tomorrow only my hub and I are going. So we have one romantic night for us only. Finally going out for a nice diner just the two off us. We need it so badly one on one time ❤️. So for now I wish you all lots off energy love and power beams. I hope I can dose my energy so I can enjoy my week out off this house. #chroniclife #chronicpain #cfsme #hypermobility #mobiltyscooter #snowboots #qualitytime #anemic #thyroidstruggles #behappy #loveourchildren #lovemygrandkids #grannyqualitytime #lovemygirls #relaxing #goodfood #lotsofflove #trymybesteveryday

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Started my morning with prayer, meditation and yoga and I feel amazing! The pain in my body has decreased tremendously and my mind & spirit are at peace. This is now a part of my DAILY routine 😌 Don't forget a new blog will be posted on trulyjazzy.weebly.com at 2pm!
#January16 #Lupus #LupusAwareness #ChronicIllness #Lupie #Spoonie #SpoonieAdventures #ChronicAdventures #TrulyJazzy #ChronicLife #Prayer #Meditation #Pain #iAmHealed

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This is something all us spoonies are can totally relate too. We are some of the strongest people alive, we have our down moments then we climb back up and carry on #strong #spoonielife #cry #fighter #chroniclife #flare

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Presenting this morning at 10:30 in the Wellesley room at @playgroundconf! We're talking how chronic pain, chronic illness, and disability play with relationships and sex! Come hang out 💜#ChronicSex #ChronicLife #ChronicPain #ChronicIllness #rheum #fibro #mentalhealth #disability #healthysexuality #selfcare #selflove #loveyourself #chronicallygorgeous #love

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So in the quest to kill the #migraine that will not quiet, I got these F-41 glasses to keep out the blue light. That with the two new medicine tapers—well, let’s keep our fingers crossed that their are low pain days and no Stanford Hospitalizations on the horizon. #chroniclife

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Uploaded a new video about my #Chroniclife (without dialogue).
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The video description is in the captions and the captions are availabe in German and English 😊
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Link is in my bio☝️
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[Image: open YouTube page with the title of my video "#Chroniclife, Part One, A very good day]

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Hailing a Ride in #NYC
Sometimes you 🐾🐾 just want to save your energy
For time in the park: #CentralPark
Playtime for the #goldenretrievers
Outdoor time is the best🐶🤩
#lifeisgoodwithdogs
#lifeisgood
#Cappuccino
#cappie
#Lilac
#dog
#dogs
#dogsofinstagram
#goldenretriever
#goldenretrieversofinstagram
#chroniclife
#arthritis
@docmaw_co
@lwilmarth
@amcny
www.Back2backWellness.com
💗🐾💗

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Melts Your Heart 💗
You will fall in #love ❤️
in a #heartbeat
Those #goldenretriever eyes & lovable manner
Their #unconditionallove ❤️ But they miss each other
Being in # NYC & @rockport_ma #Boston
They look forward to their next visit each time❣️
#compassion
#kindness
#special
#Cappuccino
#cappie
#Lilac
#dog
#dogs
#dogsofinstagram
#goldenretriever
#goldenretrieversofinstagram
#chroniclife
#arthritis
@docmaw_co
@lwilmarth
@amcny
Back2backWellness.com
💗🐾💗

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