#chroniclife

Today I’m starting to lag, I woke up late, I feel so lethargic and drained and to be honest I just want to curl up in front of the fire and sleep 😴 which is exactly what I’m going to do 😂 but I really wanted something warm and comforting for lunch so Mum found a homemade chicken curry in the freezer yesterday which I had for lunch and today I’m having the other half, with some added veggies in it 😍Exactly what I need on these cold December days! #hellohealthyamy

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Ironically this was literally me in intensive care - on the edge of survival. But it’s a closing chapter, it’s going to move forward, it’s going to get better. I am a growing person that can move off bitter memories, even the darkest ones where I felt like it was the end of it all. So for next year, I will try and see it from a new perspective again, and not judge it based on previous experiences. Because each day, week, month, year is different. It’s never going to be exactly the same no matter how much you try and make it. So expect the unexpected - and try and live with hope - because there’s always room for good change ❤️✨👍🏽 #chronicillness #chroniclife #chronicillnessawareness #chronicwarrior #positiveenergy #writer #diary #blog #invisibleillness #invisibleillawareness #writersofinstagram #writerscommunity #writerscircle #life #invisibledisability #MCTD #positivity #spiritual #yearofyes #stablity #recovery #cold #winter #patience #rheumatoidarthritis #acceptance #survival #hospital #movingon

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It’s SMOOTHIE TIME 😍 Mum wasn’t very happy about it dripping onto the table though, ooops 🤷🏼‍♀️💁🏼‍♀️ • 1/2 Frozen banana
• Frozen strawberries
• Frozen blueberries
• Vanilla protein powder
• Maca powder
• Chia seeds (topping)

#hellohealthyamy #smoothierecipes

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On a bad #pain day I can get really down. My mission to find #beauty and #smiles is an everyday thing, but on a day like today more so... •

#chroniclife #chronicpain #chronicillness #spoonie #shoutaboutpain #keepfighting #keepmoving #keephealing #keepsmiling #beautifuldistractions #gentlehugs xxx

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UPDATE 💜✋🏻: A few months ago I had the wonderful opportunity to work on a creative video piece about my lupus story using my actual voice to voice over and tell my story , and use actual photos of my life with Lupus. I got to work on it for hours to put it together for all to see and bring more awareness . Now I have 217 views ! If you haven’t checked it out you can do so I titled it :”The invisible Bully” #Lupus #LupusBlog #LupusVideo #SLE #SystemicLupus #SystemicLupusErythematosus #LupusSupport #LupusAwareness #LupusWarrior #LupusLife #LupusProblems #LupieLife #Lupie #LupusPain #LupusChick #LupieChick #LupieWarrior #ChronicIllness #ChronicLife #ChronicPain #ChronicIllnessLife #ChronicPainLife #Spoonie #Spoonies #SpoonieLife #SpoonieVideo #SpoonieProblems #SpoonieSupport #InvisibleIllness #InvisibleDisease

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Hey guys! I've been testing the #oneminutechange app out for a week or so to see how I like it, and it's pretty great so far! The idea behind the app is to take one mindful moment each hour to stretch, tap, or exercise. I personally have always been someone who believed I had to put in a full hour of intense cardio for it to "count." As a disabled person with chronic pain, I just can't do that anymore. One Minute Change gets two thumbs up from #spoonietipswap!
#chroniclife #chronicillness #mentalillness #mindfulness #sharingandcaring #kindness #fyi #depression #anxiety #ptsd #recovery #fibromyalgia #eds #spoonie #cripplepunk
@Regranned from @changeyourenergy - Have you downloaded the One Minute Change app yet? We made a step by step video and blog to guide you through using the app. It’s super easy to change your life, all it takes is a minute every hour. Check out the link in our bio for the tutorial #oneminutechange #oneminutevideo #wellness #health #fitness #fit #shortworkouts #changeyourenergy #soul #yoga #meditation - #regrann

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*Apologies for the lack of posts my instagram hadn’t been working!* The first weekend of December James & I decided to really kick start the festive season.
We took a trip to @winchestercathedral Christmas Market. I was having such a rubbish day when I woke. Awful borderline unbearable pain. However, I did not want to miss out on the Christmas Market.

We decided to give it a go. My hands were bandaged up due to dislocated fingers & thumbs. My arm was back in its sling due to shoulder pain BUT we did it!
We went for a walk around & to find some lunch. Before heading into the city to hit some shops. We then came back to the market as it would be less busy.
I bought some many Christmas presents & a few bits for James & I. It was such a lovely day. Accessibility was great. There were only a few stalls towards the exit I couldn’t get to. However, I could see relatively well from my chair. The stall owners were all lovely & super helpful allowing James to bring something to me if easier. The event stewards were also amazing. Maybe a little too over cautious however, they were trying to help!
It was such an amazing festive day with my new fairy light wheels. Finished with a party food snack & Miracle on 34th street.
Definitely head to the market if you get a chance!
#Christmas #ChristmasMarket #winchestercathedralchristmasmarket #winchestercathedral
#ChronicIllness #ChronicPain #ChronicIllnessAwareness #InvisibleIllness #InvisibleIllnessAwareness #DisabilityAwareness #Disability #CFS #ChronicFatigueSyndrome #HMS #HypermobilitySyndrome #CRPS #ComplexRegionalPainSyndrome #ChronicBackPain #OesophagealDysmotility #Dysphagia #Scoliosis #Spoonie #SpoonieLife #ProfessionalSpoonie #ChronicLife #Blogger #UKBlogger #BloggersUK #FemaleBlogger #DisabilityBlogger

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Red Rover, Red Rover, great for a sleepover! 🐶🐶 New Kids Pouch Now 15% off - use code MERRYMEDS. #kidsbag #toiletrybag #sleepover #doggies #pillfold #blog #totebag #kidswhotravel

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[New Post] When you live with pain on a daily basis, there is no such thing as 'waiting until I'm better to enjoy my life'. Instead, you have to search for joy within the mess of it all, and realise that such opposite extremes can both exist at the same time within the largeness of life. Read it here: https://is.gd/happinesspain or click on my bio for link to blog!⠀
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#chronicillness #chronicpain #chroniclife #chronicdisease #spoonie #spoonielife #spoonieproblems #lifelesson #lifelessons #pain #mentalhealth #mentalhealthawareness #awareness #mentaldisease #mentaldisorder #healthandwellness #thoughts #perspectives #lifeslikethat #happiness #happy #joy #selfawareness #mindfulness #selfrealization #meaningoflife #ironyoflife #lifegoals #lifegoal #truth

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In the midst of The Dream Plan's release, I still managed to add a few new designs to the shop, including this one. 💙 Get it as a 5x7" or 8x10" print or printable at ShopStreetlights.etsy.com 🌌

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Cute bag alert! Is it a Toiletry Bag? Medicine Pouch? First Aid Kit? You decide! Now 15% off! Use MERRYMEDS on our site. #firstaid #kidsbag #totebag #blog #toiletry

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The only girl in the gym tonight. 💪💃I didn't want to go as I had a pounding headache and aches in the body. But I made it. 30 minutes on the bike, arm and ab exercises. Damn Proud! Motion is Lotion! 😄🤗❤️ #rheumathlete #ocrrace #ocrtraining #arthritis #spondylitis #rheum #chronicillness #ChronicLife #fighter #autoimmunedisease #arthritisawareness #curearthritis #raceseason #chronicpain #rawarrior #strongerthanra #ankylosingspondylitis #gym #onlygirl

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Scenes from DC: pre arrest @senlisamurkowski’s office, “we can’t come back to talk about this next year because we’ll be dead” and I wasn’t kidding. No Medicare-part-B-covered $1500/month feeding tube formula, no more Kati. #killthebill #GOPTaxScam

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Scenes from DC: @senlisamurkowski’s chief of staff confirms she will vote yes on the #GOPTaxScam and she lied to me in September when she looked at my #feedingtube, looked in my eyes, and promised she would protect the Medicare that keeps me from starvation. Thank you to Social Security Works for the vid 😙♿️💪🏻 #listentoady

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[This is how I dry off my wheelchair rims when it’s raining. 😜]
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I went to a pain management doctor today. This was only my second appointment and, unfortunately, it doesn’t look like this doctor is going to be a match for me. Here are some red flags I look out for when deciding if a new doctor would be a valuable part of my medical treatment:
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-Interrupting me within 1-2 sentences of concise talking.
-Telling me “you can’t possibly have had a reaction to that medication”
-Not asking questions about my condition
-Assuming they know about my condition before even speaking to me
-Any sentence similar to “You’re too young to have that...”
-Attempting to prescribe me a high dose of a new medication
-Not listening to concerns I have
-Refusing to accommodate me (e.g not letting me wait in the car due to pain)
-Long wait times with no apologies or explanations
-Attempting to generalize me just like any other patient
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PM doctors are notoriously difficult for people with complex medical conditions to find - even tho they are the most beneficial for a lot of us. For me, it’s difficult to find a PM willing to see me in the first place because “I’m too young to be on narcotics” but “we only treat people on heavy narcotics” (What???) It’s especially tough to explain that I DON’T want to be there and that I can’t take strong meds to a doctor that deals in almost exclusively strong meds.
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None of my other doctors have been able to manage my pain properly because they do not know what sort of medications to try. Pain management clinic is my last and only option left to help me walk again, but it’s proving more and more difficult to find one.

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I struggle with birthdays. And Advent. 🎄
This time of year, my melancholy-leaning heart easily seeks shelter in dark corners of comparison and discouragement.
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Sometimes my feelings are not the best guide to hope and light. But the Word and Presence of God are.
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This isn’t the best caption (I’m blaming pneumonia exhaustion). But I’m glad to say yesterday (and today), I fought back with God’s help. As Karl Barth wrote, “...the living word of God is available to us.” This time of year has been hard, but God is with me and in me, renewing my strength and faith. May he renew yours as well.
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<...Also, I had enough energy to go out with my husband last night for my birthday 🙌🏽🙌🏽, and he took me to the cutest pop-up Christmas bar. I think Buddy the Elf decorated, and it was just lovely. 👌🏽>

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Mary Ann took her #CureArthritis bracelet on a hike to scenic Lake Blanche in Utah! Thank you for spreading awareness, @docmaw_co ! CureArthritis.org/shop

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Loving these new yellow Aventurine necklaces with garnet accents 💛 3 left!

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Mito Life, appointment life?!

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New blog post up! ✨ Self-care is a Necessity, Not a Luxury ✨ “Things like ridding your life of toxic friendships and trying to get more sleep don’t hold the same glitz and glam as face masks and a glass of champagne. But they’re just as important—if not more important—when it comes to self-care.” Check it out! https://www.bittersweetcoaching.com/single-post/2017/12/13/Self-Care-is-a-Necessity-Not-a-Luxury

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Ever just look back and go "Damn, I'm not too shabby looking" even when you're having a rough day? Pictures are SO important for reminding us of the things we've been able to participate in and accomplish, especially if we're struggling. This boudoir shoot constantly reminds me I can still be hot. What are some things that help remind you of your awesomeness? #boudoir #ChronicSex #ChronicLife #ChronicPain #ChronicIllness #rheum #fibro #mentalhealth #disability #healthysexuality #selfcare #selflove #loveyourself #chronicallygorgeous #love #disabledandcute

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Cold weather doesn't pair too well with #Fibromyalgia - I used to dread the winter and the changing of seasons - this season is proving to be better for me - One thing that has always helped me wether I am stressed, on the verge or crashing or already there is the magical soup known as Pho! Pho soup is a damn miracle drug - from improving your digestive and immune systems, all the way down to your bones, joints, hair, teeth and nails. Vietnamese food is known to be one of the healthiest in the world because of the importance placed on a balance of #yinandyang to create food that is beneficial to your body. 💙🖤💙 #getsomepho #pho #thefibrospecial #invisibleillness #naturalremedy #remedy #regimen #fibrohelp #fibropain #imwithyou #igotyou #chroniclife #chronicprobs #spoonie #spoonielife #spoonieprobs #vietnamesefood #yummy

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