#chronicpain

Instead of walking
With a goal
Or direction in mind;
Walk with how you feel.
Pace your steps
And breathe.
Little steps
Are the greatest
Kind.
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As I was walking to my osteopath appointment this morning I was walking my usual style - fast and hurried even though I was not late. About a minute in I noticed this and my short breaths. I stopped, looked up and saw this beautiful canopy of leaves covering me. I took a deep breath and continued my last steps mindfully. .
#gratitude#mindfulness#mindfulmovement#breathe#selfawareness#bepresent#itsthelittlethings#smallsteps#mindbodysoul#health#healing#walking#wellbeing#freshair#naturephotography#nature#naturefreak#chronicillness#invisibleillness#spoonie#hope#selflove#lifelessons#chronicfatigue#chronicpain

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Gosh, when you’re sick you are focused about your passions. Olympians are passionate too.
We’ve got this. Tune in tomorrow at 3 in our Facebook page.

#olympics #lupus #fibromyalgia #rhuematoidarthritis #spoonies #weakness #pwme #olympians #olympics2018 #POTS #msawareness #psoriasis #invisibleillness #chronicillness #cfs #chronicfatigue #chronicpain #chronicpainwarrior #lymedisease #Lyme #innerstrength

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Gosh, when you’re sick you are focused about your passions. Olympians are passionate too.
We’ve got this. Tune in tomorrow at 3 in our Facebook page.

#olympics #lupus #fibromyalgia #rhuematoidarthritis #spoonies #weakness #pwme #olympians #olympics2018 #POTS #msawareness #psoriasis #invisibleillness #chronicillness #cfs #chronicfatigue #chronicpain #chronicpainwarrior #lymedisease #Lyme #innerstrength

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Hi friends! I have a very sweet #transformationtuesday to share with you 😊
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Do you have special dates or events in your life that you measure time by? πŸ—“οΈ As a teenager we measured years by a trip to Bass Lake at the end of summer ministries πŸ•οΈ In my twenties I feel like years were measured when summer softball started up again⚾️ Now in my mid 30’s my years of growth & health are celebrated in what I call my Healthaversary πŸ™ŒπŸ’ͺ☺️
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I left the ER in tremendous pain with my Mom on Feb 19, 2013 after being told by a male DR that my only option at a normal life, pain free of Endometriosis was a full hysterectomy. Um what?! No option of ever having kids? I was just 30 years old. And more so, even back then I knew that having a hysterectomy didn’t actually get rid of the Endo. .
I was desperate for an alternative option and kept googling until I found a blog about Paleo for Endometriosis & other Autoimmune Diseases (like eczema!) I cold turkey ditched all things that weren’t in the guidelines of paleo, I was completely desperate & willing to try anything at this point. Within DAYS my life was rapidly changing for the better😍 πŸ‘
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Flash forward 5️⃣ years & its not just about food. It truly is an ENTIRE LIFESTYLE, including mindset πŸ™Œ ! Over the years (almost) everything in my life has been switched over to a cleaner, safer product. It takes time. It doesn’t happen overnight. 🌸
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I was around 160 (left) in 2010 with the Standard American Diet, 116 (middle) 2013 with Paleo & have leveled out with added muscle at 125 (right)πŸ’ͺ😊 πŸŽ—οΈ#Endometriosis #Paleo #MYfoodfreedom #truehealth

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After 3 weeks in hospital, he finally came home! @thejustonemore is recovering well with physio. Now he considers whether or not to turn the spinal cord stimulator back on! #crpssucks #brotherlove #chronicpain #musclebreakdown #startingover

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Was back in the hospital. Same old.

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Truth- sometimes having chronic pain means early nights in bed with these 2. It means not being the Mum I want to be. It means Bry has to change his plans & take on the extra stuff that I can’t do. It means Hayden has to be more independent than he needs to be. It also means I’m alive & tomorrow will be a new day. #chronicpain #tomorrowisanewday #brainaneurysm #survivor

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Time for some blunt honesty. For some context, earlier today I posted this picture on my Facebook, which generally has a watered-down version of my life with chronic illnesses. On there I have family as well as friends I know in "the real world," who sometimes get tired of hearing about the struggles I face. I posted the picture seen here with some comments about it being overcast and gloomy outside where I am, which is 100% true. But here on IG I'm a little more honest, since I don't actually know almost any of you, and you're less likely to judge me. So here we go:
This is my attempt at cheering myself up with my favorite color and my current favorite lipstick. I'm trying to make myself appear happy and normal... But I'm really struggling today, and in general. My mental state isn't as good as it should be, and I'm really lonely these days. I see myself getting more and more isolated from the world around me, and I'm not feeling like I have a purpose anymore. I can't bring myself to reach out to people around me, because I feel like no one cares or wants to hear about my problems. I just want someone to tell me it's okay to feel like this sometimes, and that I'm still loved even though I'm a burden.
I recently signed up for some more college classes, so hopefully that will help to occupy my brain. I just miss my old life, job(s), and usefulness. I need a hug. .
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#chronicillness #chronicallyill #spoonie #chronicpain #ehlersdanlos #ehlersdanlossyndrome #eds #hypermobility #gastroparesis #celiacdisease #celiac #glutenfree #gluten #pots #posturalorthostatictachycardiasyndrome #tachycardia #fibromyalgia #fibro #mobility #disabled #disability #mentalhealth

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As much as I love a good rainy day, I'm kind of over them. It's been rain and clouds forever. Life has been pretty good, fairly stressful but good. Midterms are this week and I'm cramming hard. Somehow I have a 100% in my Calc class which is utterly bananas, so I'm not nearly as stressed about that midterm as I normally would be. I've started doing daily mini workout routines to try and slowly build my strength before hopefully going back to a real gym. I went on a very short run yesterday (only half a mile) but am celebrating every victory I can get. I've also pulled out my old freediving routines and training excersizes and will hopefully be doing that again. I had to accept that I won't ever be able to do Crossfit again because of the danger it could put me in with how weak my joints are, but I want to start surfing and diving again so fingers crossed I won't have to give those up. .
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Image description: Abby in her thin framed glasses, smiling. She's wearing a mustard yellow turtleneck and a black raincoat.
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.#eds #ehlersdanlos #ehlersdanlossyndrome #chronicillness #chronicallyill #spoonie #rsd #crps #complexregionalpainsyndrome #reflexsympatheticdystrophy #POTS #POTsie #posturalorthostatictachycardia #tachycardia #pain #disabled #disability #edstype3 #dysautonomia #edsawareness #EDSZebra #migraines #chronicfatigueΒ  #chronicpain #100InvisibleDays #wheelchairuser #adaptiveathlete #freediving #surfing

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A message for myself and of course all of you guys πŸ’œπŸ’œπŸ’œ πŸ’œ

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I love my tens unit so much. It's kicking my bad knee's ass right now. #tensunit #tensmachine #chronicpain #fibromyalgia #spoonie #spooniestrong

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how I feel using mobility aids, because it’s so frustrating when I see people I used to know- they always say this. after my emerge trip I’m pondering this again too..

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Doesn't look as drastic in pictures, but this is why I'm not actively messaging people, not on Facebook, all that stuff. Arthritis to this extent is difficult. Feet, ankles, knees, back, fingers, are all the same. Very painful, limiting and difficult to manage even with strong painkillers and disease modification drugs. Always trying to push on, try to keep my animal passion the reality. But yeah, it's pretty shit. My grip strength and dexterity is gone, struggle to open a bag of crisps. if you're a close friend, try to understand. I've done the whole nearly dying and surviving against the odds thing, but this is the biggest challenge I've had to face. And given my health that's surprising. Don't feel sorry for me, but stick around, be a friend and lend support. #arthritis #arthritissucks #chronicillness #chronicpain #cannotcatchabreak #pleasesendlove

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Never give up!! Keep fighting #chronicillness #arthritis

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