#chronicpain

I find having something chewy to focus on as I do other things to distract myself really makes a difference when I’m hurting rather than just reading or watching tv alone does. Lollipops work too just the more of me is focused on other things the less is noticing how much I hurt. #chronicpain #spoonie

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Day 13: Support System?
MY AMAZING GIRLFRIEND!!! I love her more than tacos. She's always there for me and always listens to me even when I'm whining about pain for hours on end. She's an absolute angel. I honestly cannot go on enough about how much I love her and all the incredible things she's done. We slow danced at her prom, we made out on the beach at midnight, we rode a Ferris wheel and I held her hand so she wasn't as freaked out, she went with me to my audition for Disney to be moral support, and we made out in front of the White House out of pure gay spite and pissed off the Secret Service!
Mi amas vin, Violet.
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#spoonies #spoonie #spooniestrong #spoonielife #spooniechristmaschallenge #trans #transgender #transpride #gay #gaypride #lesbian #lesbianpride #chronicillness #chronicpain #chronicfatigue #beach #ldr #longdistancerelationship #cute #cutecouples #romance #esperanto #esperantisto #esperantist

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TFW yr antibiotics for a current blood infection cause a fucking yeast infection and yr at risk for a urinary tract infection thanks to circumstances and genetic issues and u have spent the last week in frustrating amounts of pain and are seething with anger that it's not ok to talk about yr pain in real life and if this post makes u uncomfortable then u deserve a yeast infection, too.
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#chronicpain #reproductivehealth #frustration #invalidated #obamacare #weneedhealthcare #lifeasawoman #ifidontventiwillfreak #ihatemybody #chronicallyfucked

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πŸŒ™ Love this! Always searching for good souls for the tribe! πŸ¦‹ β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”πŸ§˜πŸΌβ€β™€οΈ -------------------------------------- --😘🌻 β€”β€”β€”β€” β€”β€”β€”β€”β€”β€”β€”Be kind always... πŸ¦„----------- πŸ“Ώ --- β˜€οΈ------------------------------------------️🌱 --------------------------------------------------- ------➑️️➑️➑️️️Follow me on Facebook.com/AnxiousNurseLJ. -------------------------------------------------------- #selflove #mamabear #zen #vibes #followyourbliss #peace #dreamer #vegan #bekind #gypsy #nursingstudent #nursing #boho #nursingschool #bohemian #hippie #mentalhealth #nicunurse #generalizedanxietydisorder #anxiety #thankful #motivated #onelove - #ehlersdanlossyndrome #eds #pots #posturalorthostatictachycardiasyndrome #pancreatitis #chronicillness #chronicpain

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The girls decorating their own tree with all the ornaments they have made throughout the years. My other tree is in the kitchen but I do that one a certain way. They love having their own tree to decorate!! #merrychristmas #christmastree #ornaments #jesus #crohns #disease #crohnsdisease #chronic #illness #chronicallyill #chronicpain #chronicallyfabulous #spoonie #crohnie #spoonie #warrior #fighter #vape #mod #tank #ejuice #cloudsbitch #instavape #girlswhovape #makeup #coffee #chocolate

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Hello My Beautiful Mer-People! Even tho today was not such a great pain day, I am still getting a NEW VLOG UP! I’m so proud of myself for still getting it up! Link will be in BIO and listed below!
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Above is a Photo I took of the #Rainbow our peephole makes in the morning light. But this morning, my camera tripod and cords where positioned just right to create an upside down peace sign! It could not have been one of the most perfect moments. I took it as a sign of the magical things to come from Desert Mermaid. As well as the peace and love it will bring to those suffering.
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Concentrating on the computer while you are in pain or feeling sick is not easy (As all my #Spoonies know). So it makes getting editing and other things like that more challenging for me. I find myself easily making mistakes, blanking out, and losing train of thought. I know I have a long road to go down to reach my goal, with #DesertMermaid, but I am not worried about it. I know I am headed towards the right #Future for me! And I am most happy that I am able to share and document this amazing journey with all of you! It fills my heart with Joy and gives me hope for the future. It has always helped me through my low times to look back at how far I have come in such a small amount of time! .
Thanks again to everyone who has supported me! You keep me getting up and pushing through the pain! As always sending you lots of happy mermaid vibes and all my love! πŸ˜‹πŸ’—πŸŒ΅πŸšβ™ΏοΈβ˜€οΈ
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SURPRISE BEACH DAY ADVENTURE VLOG
https://youtu.be/SeqSfCJEdEc

#DesertMermaidTribe #smallyoutuber #Spoonie #PalmSprings #chronicpain #Sacroiliitis #chronicpain #hustle #hustleharder #goals #DesertMermaid #youtuber #Disabledyoutuber #vlogger #wonderlust #hippie #California #SoCal #fall #prism #rainbowlight #mermaid #mermaidvibes #backpain #vlogmas

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Hey guys! I’m dani & this is my new ig account purely for LGBTQ+ / disability related things & for content I make or write. It’ll also be somewhat of a diary, checking in on how I’m doing on a day-to-day basis, etc. In case you didn’t know / just found me - I’m an anthropology undergrad student at the Uni of Cambridge, & I’m queer and disabled & make content about being queer & disabled. I have ME/CFS, fibromyalgia and PoTS - I’m currently editing a video on what those things are / how they impact on my daily life, so I’ll link that when it’s up! I hope you guys are all having a wonderful festive period & eating lots of good food w good company and cheesy christmas movies πŸŽ„πŸŽπŸŽˆ

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I can't even begin to describe how I feel at this moment!! Whether to cry or jump up and down. I'm a flood of emotions!!! πŸ˜­πŸ’ƒ It's been almost 3 years of multiple doctors, countless vials of blood, and numerous tests which started taking it's toll on my mind and body. 🏳️

Today as I had yet another specialist appointment, I didn't think about it. I didn't want to get my hopes up only to be let down. I choose to not allow myself to think about it out of fear of disappointment.

I walked in and waited....he came in, looked at my chart and notes, did his assessment and gave me at least 2 official diagnosis. Fibromyalgia and chronic fatigue syndrome.

Hallelujah..I have a name to what ails me!!! But then I was given a blow....I had been tested for a virus that keeps showing up in blood work and it's worth looking in to. So next up, 13 vials of blood and off to see the best infectious disease doctor around.

I'm blessed to have a doctor that understands there is something wrong and just doesn't tell me a bunch of bullshit and writes me scripts to pacify me. But that he wants to find the root of what it could be.

Just when I wanted to give up and end the search, the universe told me not just yet!! Wait...I'll show you. And it was right πŸ€—

Tomorrow is a new day....a weight off my shoulders and now a name to part of puzzle.

Watch out now...I got a pep in my step and I'm gonna show the world what a girl with fibromyalgia and chronic fatigue syndrome can do πŸ‘ŠπŸ’₯πŸ˜‰

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Oncologist Discusses #MedicalMarijuana for #ChronicPain Management onclive.com/web-exclusives…

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This week's average daily steps so far and last week's average daily steps. I thought I was feeling okay, but flared up do badly that every single joint in my body burned and ached. Every muscle hurt. Twitches, spasms. No relief because I don't tolerate most Rx meds. But....I try to walk. I try to move. Bob needs to be taken out so he helps motivate me....along with pokemon go. I'm going to try and get some sleep. Exhausted. Hurt. Some nights I hurt so badly that I lay in the dark and let the tears fall. But, I keep trying. Not looking for sympathy, just sharing what you don't see in the snapchats, the photos. And trying to remind myself that I am doing something even if I end up paying for it. I need to add an uphill challenge to this for my heart and lungs and soul. But, first, I really do need to break down and get my ankle checked before it puts me down for good. Stepped wrong off a raised area of sidewalk 8 months ago!! Resting didn't help, wrapping didn't help, so I've just put up with it. Figured why go to PT if I can gently stretch, walk carefully....mindfully. truth is, I have to go to the doctor. I am unable to fix this myself. Stubborn. My OCD needs to be satisfied.
I wish my efforts showedπŸ˜” .
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#walk #onestepatatime #exercise #walkingthedog #onedayatatime #journey #ocdtendencies #stubborn #fibromyalgia #fibro #chronicpain #butyoudontlooksick #keeptrying #pushing #pain #keepgoing #exhausted #onefootinfrontoftheother #imthinkingoutloud

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DO YOU KNOW HOW AMAZING IT FEELS TO HAVE YOUR FREEDOM?

It's been 4-6 months since I've had a car (It all blends in together)! MONTHS I TELL YOU! Stuck! In A Place! Where I was unhappy! MONTHS!!!! Well, today my friends I have my freedom Wa ha ha!!!! Watch out world Erin is on the road and she has months of pent-up road rage to expel (just kidding ...). I am a free woman! And now it's time to get to work, work on looking for homes to rent (yay Courtney Swanson Pleiss). It's a wonderful day guys! I'm so happy! I love it! I haven't had a car this nice since 2013!
You see it works! When you have a goal, a dream even if it takes longer than you want... If you don't give up and keep at it, you can achieve anything, even getting a car! I wouldn't be here if it wasn't for coaching!

What's one thing that you achieved recently?

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We went to see the pain management doctor today.
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Three strikes and they’re out!
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Those people are not as warm and cuddly as the snowman in the first photo. They’re more like the abominable snowman in the second photo. 😑
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The first time we went to that clinic we had to leave after waiting over two hours. The second time we went to see them, the doctor told Bethany to go lift weights and showed no interest in her case, but the nurse practitioner seemed more caring. So we went back a third time. But now both the doctor and the nurse have regrouped and are obviously in agreement Bethany is not worth their time. On this visit we didn’t see the doctor and the nurse practitioner dismissed everything Bethany told her.
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No. The medication I gave you does not treat nerve pain. (Even though a 1 minute google search will say differently)
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No. The medication I gave you does not cause anxiety. (Even though Bethany’s psychiatrists disagreed and even helped her by discussing with her some options)
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No. You don’t have nerve pain. You have muscle spasms. (Even though the physical therapist is convinced there is nerve pain involved )
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No. I don’t need to change the medication, I need to double it. (Even though Bethany is clearly sensitive to the medication)
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The nurse did not offer any options or explained any plan to treat the pain. She had clearly changed her attitude since last time we met with her.
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Bethany handled it well. She knows how to read when a doctor is done wanting to deal with her. She saves her energy and does not argue with them, but she walks away disappointed because she knows we need to start from square one looking for a new doctor.
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I walk away angry and frustrated. I want to yell at these doctors and tell them how they have cause so much more extra work and pain for my daughter.
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But I can’t judge if their callous attitude comes from ignorance and fear to such complicated case or from an uncaring heart. Convincing them to care is not at all worth my time and effort. If a doctor is uninterested in helping, wether because of lack of knowledge or carelessness, there’s nothing we can do except chuck it as lesson learned. #painmanageme

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I can’t even tell you how painful it is to be exfoliated when you have fibromyalgia!! It’s one of those pains like doms (delayed onset muscle soreness- the discomfort felt days after a workout) that you put up with because you know the benefit and end result outweighs the temporary discomfort. Slow, diaphragmatic breathing helps and let’s your body know it’s ok, no need to stress. Massages are just the same - not relaxing at all even with the slightest touch. Days and sensitivity fluctuate - today is a sensitive day. #fibromyalgia #youreawarrior #strongerthanyouthink

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πŸ™‡πŸ»β€β™‚οΈ Sharing an article I authored on LOW BACK PAIN & integrative management, out now as a featured story in the journal Consultant, also available online.
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#pain #lowbackpain #backpain #chronic #acute #chronicpain #feelbetter #doctor #doctors #physician #healing #painmanagement #familymedicine #medicine #integrativemedicine #integrativehealth #teacher #healer #article #wednesday #nyc #peace ✌🏽

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I mean seriously... chronic illness is no joke. Endometriosis kicks my butt almost everyday and when yu add PT into the mix while DAMN let’s just say I’m in for an interesting night of pain. Today was one of those days where I ended up crying and had to tell them to stop because it was so painful... too painful for them to continue but it’s the story of my life. Something I have to deal with every day. And some days I truly wish it was just someone playing with a voodoo doll and all they had to do was stop and I would feel like a normal person again. #chronicpain #chronicillness #endometriosis #nocurrentcure #endometriosisawareness #endowarrior #edosister #wecandothistogether #pelvicfloordysfunction #pelvicpain #pelvicpainawareness #vulvodynia

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🌿Cannabidiol (CBD) oil 🌱is used by some people with CHRONIC PAIN πŸ’šCBD oil may reduce pain, 🌱inflammation, and πŸƒoverall discomfort related to a variety of health conditions. βœ…CBD oil is a product made from cannabis. It's a type of cannabinoid, a chemical found naturally in marijuana and hemp plants. 🌷IMPROVE the QUALITY of YOUR LIFE. πŸ’šGet off prescription drugs πŸ’šself medicating with alcohol and drugsπŸ’šCBD Saves Lives! To health ❀️❀️❀️❀️peace & Love

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